Evidence map›Paper›PMID 36688269›Full record

ArticleNursing ethics2023

Shared responsibility for decision-making in NICU: A scoping review.

Hanna-Kaisa Pellikka, Anna Axelin, Ulla Sankilampi, Mari Kangasniemi

Abstract readScoping Review
In one paragraph

Article in Nursing ethics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Hanna-Kaisa PellikkaUniversity of Turku, Finland.ORCID 0000-0003-0609-0943
Anna AxelinUniversity of Turku, Finland.
Ulla SankilampiKuopio University Hospital, Finland; University of Eastern Finland, Finland.
Mari KangasniemiUniversity of Turku, Finland; Satakunta Hospital District, Finland.ORCID 0000-0003-0690-1865

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundShared responsibility is an essential part of family-centred care and it characterizes the relationship between parents and healthcare professionals. Despite this, little is known about their shared responsibility for decision-making in neonatal intensive care units.

aimThe aim of this scoping review was to identify previous studies on the subject and to summarize the knowledge that has been published so far.

methodThe review was conducted using electronic searches in the CINAHL, PubMed, Scopus and PsycINFO databases and manual searches of the reference lists of the selected papers. The searches were limited to peer-reviewed papers that had been published in English from 2010 to September 2021. The data were selected based on inclusion and exclusion criteria and the findings were inductively summarized. We identified eight papers that met the inclusion criteria. ETHICAL CONSIDERATIONS: The scoping review was conducted according to good scientific practice by respecting authorship and reporting the study processes accurately, honestly and transparently.

resultsThe results showed that shared responsibility for decision-making was based on the parents' intentions, but the degree to which they were willing to take responsibility varied. The facilitating and inhibiting factors for shared responsibility for decision-making were related to the communication between parents and professionals. The impact was related to the parents' emotions.

conclusionIt is essential that parents and professionals negotiate how both parties will contribute to their shared responsibility for decision-making. This will enable them to reach a mutual understanding of what is in the infants' best interests and to mitigate the emotional burden of decisions in neonatal intensive care units. More research is needed to clarify the concept of shared responsibility for decision-making in this intensive care context.

Indexed as

Decision MakingIntensive Care Units, NeonatalCommunicationEmotionsHumansInfant, NewbornPalliative CareDecision-makingfamily-centred careneonatal intensive care unitsscoping reviewshared responsibility

Identifiers

PMID36688269
PMCPMC10185855

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.