ArticleHealth expectations : an international journal of public participation in health care and health policy2023
Nothing about us without us: A co-production strategy for communities, researchers and stakeholders to identify ways of improving health and reducing inequalities.
Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
39 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluating Process and Outcomes of Public Involvement in Applied Health and Social Care Research: A Rapid Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Reflections on the role of Peer Researchers in eating disorders: identifying challenges, best practices, and future directions.Journal of eating disorders · 2026Article
- Group Poetry and Quilt-Making -Creative Public Involvement Approaches to Contentious Concepts in Frailty Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Realist synthesis of co-production of services in a local authority context: what works, for whom, how and in what circumstances?Health research policy and systems · 2026Review
- Co-Creation of a Study Protocol to Assess the Effect of Transcranial Direct Current Stimulation in the Management of Fatigue in Children and Young People With Acquired Brain Injury (Fatiguebrain-tDCS).Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Embedding Multiperspective Reflections in Co-Producing a Training Intervention for Care Home Staff: Understanding Group Members' Journeys and Impacts.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Food Improvement Goals in Schools (FIGS I): a qualitative evaluation of a whole-school approach to healthy food provision in primary schools.BMC public health · 2026Article
- Creating a meta-REM map: pragmatic improvements to ripple effects mapping methodology used to support evaluations of complex public health systems.BMC medical research methodology · 2026Article
- An adaptive, youth-centred co-design methodology: place-based co-design centring youth and community participation.Research involvement and engagement · 2026Article
- Co-producing sexual health services with minoritised communities: learning from a longitudinal qualitative evaluation.BMJ public health · 2026Article
- Mapping ActEarly: Using a child health map to evaluate a City Collaboratory programme on early promotion of good health and wellbeing.PloS one · 2026Article
- A co-production study of an art-based media campaign intervention to encourage early breast cancer screening uptake among Black women in England.Frontiers in public health · 2026Article
- Co-production in sleep research: A scoping review of current practices and future directions.Journal of sleep research · 2025Article
- Co-Development of the CoMUni Intervention: A Social-Media-Based Resource to Increase Mental Health Help-Seeking Behaviours in UK Undergraduates.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from "Baby Ubuntu" to "Encompass".International journal of environmental research and public health · 2025Article
- Building health systems capable of leveraging AI: applying Paul Farmer's 5S framework for equitable global health.BMC global and public health · 2025Review
- Evaluation of a participatory action project to improve safety and outcomes in maternity care.Health research policy and systems · 2025Article
- Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction.BMC health services research · 2025Article
- Article
- Protocol: Applying co-production and peer research approaches with community organisations to develop a blueprint for the centre for Co-Production and Peer Research (CoPPeR) network.NIHR open research · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
introductionCo-production with communities is increasingly seen as best practice that can improve the quality, relevance and effectiveness of research and service delivery. Despite this promising position, there remains uncertainty around definitions of co-production and how to operationalize it. The current paper describes the development of a co-production strategy to guide the work of the ActEarly multistakeholder preventative research programme to improve children's health in Bradford and Tower Hamlets, UK.
methodsThe strategy used Appreciative Inquiry (AI), an approach following a five-step iterative process: to define (Step 1) scope and guide progress; to discover (Step 2) key issues through seven focus groups (N = 36) and eight in-depth interviews with key stakeholders representing community groups, and the voluntary and statutory sectors; to dream (Step 3) best practice through two workshops with AI participants to review findings; to design (Step 4) a co-production strategy building on AI findings and to deliver (Step 5) the practical guidance in the strategy.
resultsNine principles for how to do co-production well were identified: power should be shared; embrace a wide range of perspectives and skills; respect and value the lived experience; benefits should be for all involved parties; go to communities and do not expect them to come to you; work flexibly; avoid jargon and ensure availability of the right information; relationships should be built for the long-term; co-production activities should be adequately resourced. These principles were based on three underlying values of equality, reciprocity and agency.
conclusionThe empirical insights of the paper highlight the crucial importance of adequate resources and infrastructure to deliver effective co-production. This documentation of one approach to operationalizing co-production serves to avert any misappropriations of the term 'co-production' by listening to service users, stakeholders and other relevant groups, to develop trust and long-term relationships, and build on the learning that already exists amongst such groups. PATIENT OR PUBLIC CONTRIBUTION: The work was overseen by a steering group (N = 17) of individuals, both professional and members of the public with experience in undertaking co-production, and/or with some knowledge of the context of the two ActEarly field sites, who provided regular oversight and feedback on the AI process.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.