Evidence map›Paper›PMID 36680577›Full record

ArticleEuropean journal of pediatrics2023

Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia.

Jakob Meglič, Ajda Lisec, Dušanka Lepej, Tanja Loboda, Sara Bertok, Petra Lešnik Musek, Ivana Kreft Hausmeister, Majda Oštir, Tehvida Ponjević, Anamarija Meglič

Open access · hybridFull text read
In one paragraph

Article in European journal of pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
2.9field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 1 institution in 1 country.

Jakob Meglič *University Medical Centre, Ljubljana, Slovenia.ORCID http://orcid.org/0000-0003-1686-8165
Ajda Lisec *University Medical Centre, Ljubljana, Slovenia. lisecajda@gmail.com.ORCID http://orcid.org/0000-0001-5463-3901
Dušanka LepejPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Tanja LobodaPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Sara BertokPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Petra Lešnik MusekPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Ivana Kreft HausmeisterPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Majda OštirPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Tehvida PonjevićPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.
Anamarija MegličPediatric Palliative Team, University Children's Hospital, University Medical Centre, Ljubljana, Slovenia.ORCID http://orcid.org/0000-0002-1273-690X
Ljubljana University Medical Centre · SI

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early implementation of PPC. The aim of the study was to design starting points for the establishment of accessible PPC with early involvement of patients in a tertiary-level children's hospital. An intervention, presentation, and discussion on PPC were offered by the hospital PPC team to all employees in the hospital. A total of 237 participants (physicians 30.4%, nurses 49.4%, psychologists 8.4%, and others) completed a questionnaire before and after the intervention. The personnel's knowledge, self-assessment of their ability to perform PPC, attitude to participate in PPC, and their awareness and understanding of the need for PPC were evaluated. The results were analyzed using Pandas and SciPy libraries in Python. The knowledge, awareness, and attitude of the physicians, nurses, and other professionals improved significantly after the intervention. However, the self-assessment of their ability to perform PPC did not increase. Previous experience with the death of a patient has proven to be a stimulus for self-initiative in acquiring knowledge in PPC and was linked with a better attitude and higher awareness of the need for PPC.Conclusions: More education and practical work tailored to the different professional profiles are needed, with adjustments for specific subspecialist areas, especially where patients could be included in early PPC. Although additional studies are needed, we identified the main directions for the further implementation of PPC in clinical practice in our setting.

Indexed as

Palliative CarePhysiciansChildHospitals, UniversityHumansSloveniaSurveys and QuestionnairesImplementationLife-limiting diseaseLife-threatening conditionPediatric palliative careQuality of children’s life

Identifiers

PMID36680577
PMCPMC10023644
OpenAlexW4317638034

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read30
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.