Evidence map›Paper›PMID 36672371›Full record

ArticleCancers2023

Patient Reported Outcomes and Measures in Children with Rhabdomyosarcoma.

Marloes van Gorp, Martha A Grootenhuis, Anne-Sophie Darlington, Sara Wakeling, Meriel Jenney, Johannes H M Merks, Lisa Lyngsie Hjalgrim, Madeleine Adams

Open access · goldAbstract read
In one paragraph

Article in Cancers, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.7field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 3 countries.

Marloes van GorpPrinces Máxima Center for Pediatric Oncology, 3584 CS Utrecht, The Netherlands.ORCID 0000-0002-1690-5926
Martha A GrootenhuisPrinces Máxima Center for Pediatric Oncology, 3584 CS Utrecht, The Netherlands.
Anne-Sophie DarlingtonSchool of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK.
Sara WakelingFounder, Alice's Arc, Rhabdomyosarcoma Children's Cancer Charity, London E4 7RW, UK.ORCID 0000-0002-3563-0390
Meriel JenneyChildren's Hospital for Wales, Cardiff CF14 4XW, UK.
Johannes H M MerksPrinces Máxima Center for Pediatric Oncology, 3584 CS Utrecht, The Netherlands.ORCID 0000-0001-7659-1028
Lisa Lyngsie HjalgrimDepartment of Paediatrics and Adolescent Medicine, Rigshospitalet, 2100 Copenhagen, Denmark.
Madeleine AdamsChildren's Hospital for Wales, Cardiff CF14 4XW, UK.
Princess Máxima Center · NLNoah's Ark Children's Hospital for Wales · GBLondon Cancer · GBRigshospitalet · DKUniversity of Southampton · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In addition to optimising survival of children with rhabdomyosarcoma (RMS), more attention is now focused on improving their quality of life (QOL) and reducing symptoms during treatment, palliative care or into long-term survivorship. QOL and ongoing symptoms related to the disease and its treatment are outcomes that should ideally be patient-reported (patient-reported outcomes, PROs) and can be assessed using patient-reported outcome measures (PROMS). This commentary aims to encourage PRO and PROM use in RMS by informing professionals in the field of available PROMs for utilisation in paediatric RMS and provide considerations for future use in research and clinical practice. Despite the importance of using PROMs in research and practice, PROMs have been reported scarcely in paediatric RMS literature so far. Available literature suggests lower QOL of children with RMS compared to general populations and occurrence of disease-specific symptoms, but a lack of an RMS-specific PROM. Ongoing developments in the field include the development of PROMs targeted at children with RMS specifically and expansion of PROM evaluation within clinical trials.

Indexed as

adverse eventschildhood cancerpatient-reported outcome measurespatient-reported outcomesquality of liferhabdomyosarcoma

Identifiers

PMID36672371
PMCPMC9856469
OpenAlexW4313827415

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.