ArticleChildren (Basel, Switzerland)2022
Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer.
Article in Children (Basel, Switzerland), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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Who cites it
7 citing papers in PubMed.
- Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care.Pediatric blood & cancer · 2026Article
- Facing the cancer-related life threat as adolescent and young adult (AYA) after initial diagnosis: A qualitative interview study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "I had no idea what to expect": adolescent and young adults with cancer identify opportunities for patient-centered anticipatory guidance through narrative writing.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "We Were Still Left in the Back Field, Not Knowing": Pediatric Cancer Patients and Parents Describe Obstacles to Prognostic Communication.Cancer medicine · 2025Article
- Exploring Adolescent and Young Adult Cancer Survivors' Experience with Cancer Treatment-Related Symptoms: A Qualitative Analysis of Semi-Structured Interviews.Journal of adolescent and young adult oncology · 2024Article
- Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Family Communication About Cancer in Korea: A Dyadic Analysis of Parent-Adolescent Conversation.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
Effective communication is integral to patient and family-centered care in pediatric and adolescent and young adult (AYA) oncology and improving healthcare delivery and outcomes. There is limited knowledge about whether AYAs and parents have similar communication preferences and needs. By eliciting and comparing communication advice from AYAs and parents, we can identify salient guidance for how clinicians can better communicate. We performed secondary analysis of semi-structured interviews from 2 qualitative communication studies. In one study, 80 parents of children with cancer during treatment, survivorship, or bereavement were interviewed. In the second study, AYAs with cancer during treatment or survivorship were interviewed. We asked AYAs and parents to provide communication advice for oncology clinicians. Using thematic analysis, we identified categories of advice related to three overarching themes: interpersonal relationships, informational preferences, and delivery of treatment, resources, and medical care. AYAs and parents provided similar advice about the need for compassion, strong connections, hopefulness, commitment, and transparent honesty However, AYAs placed additional emphasis on clinicians maintaining a calm demeanor.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.