Evidence map›Paper›PMID 36668959›Full record

ArticleTropical medicine and infectious disease2023

Meaningful Engagement of Persons Affected by Leprosy in Research: An Exploration of Its Interpretation, Barriers, and Opportunities.

Laura de Groot, Anna T van 't Noordende, Mathias Duck, Joshua Oraga, Sarju Sing Rai, Ruth M H Peters, Nienke Veldhuijzen

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Tropical medicine and infectious disease, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
1.3field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 2 countries.

Laura de GrootLeprosy Research Initiative, 1097 DN Amsterdam, The Netherlands.ORCID 0000-0001-5383-0807
Anna T van 't NoordendeNLR, 1097 DN Amsterdam, The Netherlands.ORCID 0000-0002-6415-1057
Mathias DuckInternational Federation of Anti-Leprosy Associations (ILEP), 1204 Geneva, Switzerland.
Joshua OragaInternational Federation of Anti-Leprosy Associations (ILEP), 1204 Geneva, Switzerland.
Sarju Sing RaiAthena Institute, VU University Amsterdam, 1081 HV Amsterdam, The Netherlands.ORCID 0000-0001-5914-1471
Ruth M H PetersAthena Institute, VU University Amsterdam, 1081 HV Amsterdam, The Netherlands.
Nienke VeldhuijzenLeprosy Research Initiative, 1097 DN Amsterdam, The Netherlands.
Netherlands Leprosy Relief · NLAmsterdam UMC Location Vrije Universiteit Amsterdam · NLThe Leprosy Mission International · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Despite the growing interest in public and patient involvement in research, best practices in the leprosy context have yet to be explored. This mixed-method study aimed to explore the interpretation, barriers and opportunities of meaningful engagement of persons affected by leprosy in research through: (i) an exploratory phase consisting of key informant interviews with experts in public and patient involvement (

Indexed as

experts-by-experienceleprosymeaningful engagementpublic and patient involvement

Identifiers

PMID36668959
PMCPMC9867310
OpenAlexW4315491476

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.