ArticleNeuro-oncology practice2023
The emotional journey of neuro-oncology: Primary brain tumor patients share their experience during this life-threatening disease.
Article in Neuro-oncology practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed.
- Rehabilitation in patients with primary brain tumors: a scoping review of current guideline recommendations.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026Article
- Support interventions for families facing parental life-threatening illness - A scoping review.Palliative & supportive care · 2026Article
- Creating a neuro-oncology framework for an empowered and engaged peer volunteer patient community.Neuro-oncology practice · 2026Article
- Construction and internal assessment of an exploratory risk prediction model for psychological distress in brain tumor patients: a cross-sectional study.BMC cancer · 2026Article
- The Role of Resilience in Coping With Future Uncertainty Among People With Brain Tumors: Cross-Sectional Study.JMIR cancer · 2026Article
- Article
- Fears and uncertainties of people with Parkinson's disease.Journal of Parkinson's disease · 2025Article
- Evaluating Clinical and Sociodemographic Risk for Symptom Burden Associated Interference With Daily Functioning in the Primary Brain Tumor Patient Population.Cancer medicine · 2025Observational
- "Aiming at a moving target"-The daily life experiences of adolescents and young adults with a low-grade glioma.Neuro-oncology practice · 2025Article
- Navigating the Abyss: Psychological Burdens in Brain Tumor Patients.International clinical and medical case reports journal · 2025Article
- Review
- Identifying research priorities and essential elements of palliative care services for people facing malignant brain tumors: A participatory co-design approach.Neuro-oncology practice · 2024Article
- In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.Journal of Parkinson's disease · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: To achieve patient-centric quality care in neuro-oncology, all aspects of the disease and its impact on quality survival need to be considered. This includes the psychological consequences of a brain tumor diagnosis and subsequent life-altering experiences. Far too often the voice of our patients is unheard. Empowering patients to advocate for their own psychological needs is essential. Methods: Data were derived from four focus groups with adult patients with brain tumors ( Results: Of the two themes presented, 14 codes emerged. Codes were classified into three broad categories: Fear, Despair, and Resilience. The frequency of each category ranged from 31.4% to 34.7%. Example quotes and a discussion of each category follows. Conclusions: It is imperative that we include the patient perspective in the development of neuro-oncology programs, thereby considering the
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.