ArticleJournal of autism and developmental disorders2024
Estimating the Prevalence of Autism Spectrum Disorder in New South Wales, Australia: A Data Linkage Study of Three Routinely Collected Datasets.
Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Systematic review of measures and interventions for caregiver adjustment to child autism diagnosis.Autism : the international journal of research and practice · 2026Pooled it
- Adaptation of COMPASS for use in Autism-Specific Schools in Australia: A Cluster Randomized Trial.Journal of autism and developmental disorders · 2025Trial
- Observational
- AI and neuroimaging in autism spectrum disorder: advances in diagnosis, methodological challenges and future directions.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026Review
- Autism in neurofibromatosis type 1: prevalence, phenotype and clinical implications.Molecular autism · 2026Article
- Predictive Value of Referral Concerns for Autism Spectrum Disorder and Global Developmental Delay: A Retrospective Audit of a Tertiary Paediatric Developmental Service.Journal of paediatrics and child health · 2026Article
- Healthcare utilization for eating disorders in Australia: 10 years of health data linkage.The Australian and New Zealand journal of psychiatry · 2025Article
- Autism Detection in Early Childhood (ADEC) in a Low-Income Spanish-Speaking Population in Guayaquil (Ecuador).Journal of autism and developmental disorders · 2025Article
- Methods used to construct disability indicators in linked administrative datasets: a systematic scoping review.Population health metrics · 2025Article
- Intellectual disability and autism prevalence in Western Australia: impact of the NDIS.Frontiers in psychiatry · 2024Article
- Assessment of Knowledge and Attitude of General Practitioners Regarding Autism and Associated Factors at Gondar University Hospital, Gondar, Ethiopia.Advances in medicine · 2024Article
- Intercontinental insights into autism spectrum disorder: a synthesis of environmental influences and DNA methylation.Environmental epigenetics · 2024Review
- Effect of counselling intervention on stress and expressed emotions among family caregivers of children with autism.Journal of medicine and life · 2023Article
- The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents' Perspectives.Children (Basel, Switzerland) · 2023Article
- Prevalence of Autism Spectrum Disorder in the Centro region of Portugal: a population based study of school age children within the ASDEU project.Frontiers in psychiatry · 2023Article
- Autism in Australia: Understanding, challenges, and support.International journal of health sciencesArticle
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
Routinely collected data help estimate the prevalence of autism spectrum disorder (ASD) in jurisdictions without active autism surveillance. We created a population-based cohort of 1,211,834 children born in 2002-2015 in New South Wales, Australia using data linkage. Children with ASD were identified in three datasets - disability services, hospital admissions, and ambulatory mental health data. The prevalence of ASD in the cohort was 1.3% by age 12 and prevalence at age 6 increased an average of 4.1% per year (95% Confidence Interval, 3.3%, 4.8%). Most children with ASD were identified in disability services data (87%), although data linkage identified 1,711 additional cases that were more likely female, older at first contact, and living in major cities and less disadvantaged areas.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.