ArticleJournal of the American Geriatrics Society2023
"Advocating for what we need": A CBPR approach to advance care planning in the Latinx older adult community.
Article in Journal of the American Geriatrics Society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Gender differences in the context of interventions for improving health literacy in migrants: a qualitative evidence synthesis.The Cochrane database of systematic reviews · 2024Pooled it
- Predictors of Readiness to Engage in Advance Care Planning Among Older Adults With Serious Illness: Baseline Findings From the EQUAL ACP Study.Journal of the American Geriatrics Society · 2026Trial
- Article
- Defining End-of-Life Preparedness: A Dyadic Qualitative Study of Hispanic Patients with Advanced Breast Cancer and Their Caregivers.Healthcare (Basel, Switzerland) · 2026Article
- Community-Based Interventions for Initiating Early End-of-Life Conversations in Nonterminally Ill Adults: A Systematic Review.Campbell systematic reviews · 2026Review
- Advance Care Planning Motivators Among Adults With Serious Illness.JAMA network open · 2025Article
- Barriers and facilitators to COVID-19 testing and vaccination: a qualitative focus group study among Rhode Island's Latine/Hispanic community.Frontiers in health services · 2025Article
- What Clinicians and Researchers Should Know About the Evolving Field of Advance Care Planning: a Narrative Review.Journal of general internal medicine · 2024Review
- Advance care planning as perceived by marginalized populations: Willing to engage and facing obstacles.PloS one · 2024Article
- "At the End I Have a Say": Engaging the Chinese Community in Advance Care Planning.Journal of pain and symptom management · 2023Article
- Quality and Satisfaction With Advance Care Planning Conversations Among English- and Spanish-Speaking Older Adults.Journal of palliative medicine · 2023Article
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Authors and funding
12 authors.
Funding
Abstract
backgroundAdvance care planning (ACP) is low among Latinx older adults. We used community-based participatory research (CBPR) to identify ACP barriers/facilitators and design community-based ACP events.
methodsIn partnership with community-based organizations, clinicians, and local government, we formed a Latinx Community Committee (n = 13 community members). We then conducted 6 focus groups with Latinx-identifying, English or Spanish-speaking older adults (age ≥ 55), caregivers, and community leaders to assess ACP barriers/facilitators. We analyzed transcripts using thematic analysis and, based on these learnings, designed and implemented community-based ACP events. Using a validated survey, we assessed acceptability and pre-to-post-event ACP readiness (4-point scale; 4 = most ready; 0.2 change considered meaningful) with Wilcoxon signed-rank tests.
resultsFocus groups included 10 Spanish-speaking older adults, 8 caregivers, and 10 community leaders. Themes highlighted the importance of ACP (e.g., means of advocacy), barriers (e.g., how to start conversations), and facilitators (e.g., trusted community spaces) in the Latinx community. Ninety-seven people attended 5 events targeting 3 Latinx populations (LGBTQI+, intergenerational, and older adults broadly). Overall pre-to-post-event ACP readiness increased (2.62 (SD 0.97) to 2.95 (SD 0.93); p = 0.05). Readiness to document wishes increased significantly (2.44 (SD 1.0) to 2.98 (SD 0.95); p = 0.003). Most reported being comfortable attending events (85%) and would recommend them to others (90%).
conclusionsThis study describes a feasible, acceptable, and effective CBPR ACP intervention. Co-developed community events represent a promising approach to reducing disparities in ACP among the Latinx population.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.