Evidence map›Paper›PMID 36648146›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2023

Catalyzing dementia care through the learning health system and consumer health information technology.

Jennifer L Wolff, Catherine M DesRoches, Halima Amjad, Julia G Burgdorf, Melanie Caffrey, Chanee D Fabius, Kelly T Gleason, Ariel R Green, Chen-Tan Lin, Stephanie K Nothelle and 4 more

Abstract read
In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Race-Specific Impact of Telehealth Advance Care Planning on Cost of Dementia: A Cost Prediction Study.International journal of environmental research and public health · 2025
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Observational
  14. Article
  15. Article
  16. Article
  17. Article
  18. Use of the patient portal among older adults with diagnosed dementia and their care partners.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023
    Observational
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Jennifer L WolffDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.ORCID 0000-0002-7898-3903
Catherine M DesRochesOpenNotes/Beth Israel Deaconess Medical Center, Department of Medicine, Harvard Medical School, Boston, Massachusetts, USA.
Halima AmjadDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Julia G BurgdorfCenter for Home Care Policy & Research, Visiting Nurse Service of New York, New York, New York, USA.
Melanie CaffreySpringer Science+Business Media LLC, Oracle Magazine, Computer Technology and Applications Program, Columbia University, New York, New York, USA.
Chanee D FabiusDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Kelly T GleasonJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Ariel R GreenDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Chen-Tan LinUniversity of Colorado, Aurora, Colorado, USA.ORCID 0000-0002-8678-7945
Stephanie K NothelleDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Danielle PeereboomDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Danielle S PowellDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Catherine A RiffinDivision of Geriatrics and Palliative Medicine, Weill Cornell Medical Center, New York, New York, USA.
Hillary D LumDivision of Geriatric Medicine, University of Colorado School of Medicine, Aurora, Colorado, USA.

Funding

Training Core (I)U54AG063546 · NIA · BROWN UNIVERSITY · PI Alexia Mary Torke · 2019 to 2026
$125.9M
Remote Data Enclave Core (RDEC)P30AG066587 · NIA · JOHNS HOPKINS UNIVERSITY · PI Kali St. Marie Thomas · 2020 to 2026
$6.7M
Consumer Health Information Technology to Engage and Support ADRD Caregivers: Research Program to Address ADRD Implementation MIlestone 13.IR35AG072310 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2021 to 2025
$4.3M
eAlign: A Patient Portal-based Intervention to Align Medications with What Matters MostR01AG077011 · NIA · JOHNS HOPKINS UNIVERSITY · PI Ariel Green, CHRISTINE D JONES · 2022 to 2026
$3.9M
Health Services and Outcomes Research for Aging PopulationsT32AG066576 · NIA · JOHNS HOPKINS UNIVERSITY · PI CYNTHIA Melinda BOYD, Jennifer L. Wolff · 2020 to 2026
$3.8M
Primary care based collaborative approach to care management for older adults with dementiaK23AG072037 · NIA · JOHNS HOPKINS UNIVERSITY · PI NOTHELLE, STEPHANIE · 2021 to 2025
$946k
Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
Promoting Research Continuity and Progress toward the Development of a Novel Screening Intervention for Family Caregivers in Primary CareK01AG061275 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI RIFFIN, CATHERINE · 2019 to 2023
$680k
Characterization and effect of co-existence of care management programs for high need, high cost older adultsR03AG060170 · NIA · JOHNS HOPKINS UNIVERSITY · PI NOTHELLE, STEPHANIE · 2018 to 2019
$246k
NIA NIH HHS K01 AG061275NIA NIH HHS K23 AG064036NIA NIH HHS K23 AG072037NIA NIH HHS P30 AG066587NIA NIH HHS R01 AG077011NIA NIH HHS R03 AG060170NIA NIH HHS R35 AG072310NIA NIH HHS T32 AG066576NIA NIH HHS U54 AG063546
6 · The paper itself

Abstract

To advance care for persons with Alzheimer's disease and related dementias (ADRD), real-world health system effectiveness research must actively engage those affected to understand what works, for whom, in what setting, and for how long-an agenda central to learning health system (LHS) principles. This perspective discusses how emerging payment models, quality improvement initiatives, and population health strategies present opportunities to embed best practice principles of ADRD care within the LHS. We discuss how stakeholder engagement in an ADRD LHS when embedding, adapting, and refining prototypes can ensure that products are viable when implemented. Finally, we highlight the promise of consumer-oriented health information technologies in supporting persons living with ADRD and their care partners and delivering embedded ADRD interventions at scale. We aim to stimulate progress toward sustainable infrastructure paired with person- and family-facing innovations that catalyze broader transformation of ADRD care.

Indexed as

Alzheimer DiseaseDementiaLearning Health SystemCaregiversHumansQuality Improvementdementiahealth equityimplementation sciencelearning health systempatient portal

Identifiers

PMID36648146
PMCPMC10182243

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.