ArticleJournal of the American Heart Association2023
Developmental Care for Hospitalized Infants With Complex Congenital Heart Disease: A Science Advisory From the American Heart Association.
Article in Journal of the American Heart Association, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 2 syntheses or guidelines pooled it, 66 citations in OpenAlex.
- Breastfeeding infants with CHD: an evidence summary and recommendations from the Cardiac Newborn Neuroprotective Network, a special interest group of the Cardiac Neurodevelopmental Outcome Collaborative.Cardiology in the young · 2025Guideline
- A systematic review of early motor interventions for infants with congenital heart disease and open-heart surgery.Systematic reviews · 2023Pooled it
- Perceived family-centered care and post-traumatic stress in parents of infants cared for in the paediatric cardiac intensive care unit.Nursing in critical care · 2024Trial
- Neurodevelopmental risk in a referred sample of hospitalized children with congenital heart disease: interrelation between communication and feeding vulnerabilities.Clinics (Sao Paulo, Brazil) · 2026Article
- Developmental Care in the Early Years in Pediatric Intensive Care Patients as a Strategy to Mitigate Pediatric Post-Intensive-Care Syndrome: A Narrative Review.Journal of intensive care medicine · 2026Review
- Human milk and breastfeeding support in United States paediatric cardiac ICUs: a multicentre cohort and survey study.Cardiology in the young · 2026Article
- Neurodevelopmental care across pediatric critical care settings: toward brain-focused critical care.European journal of pediatrics · 2026Review
- Newborn and family-centered care: a scoping review on related newborn rights and principles.Journal of global health · 2026Article
- Early Neurodevelopmental Outcomes in Children With Congenital Heart Disease.JAMA network open · 2026Article
- Increasing the reach of developmental services among children with congenital heart disease.Pediatric research · 2026Article
- Patterns, survival, and mortality predictors in children with down syndrome and congenital heart disease in resource-limited settings: a follow-up study.BMC pediatrics · 2026Article
- Prenatal maternal psychological distress is associated with neurodevelopmental outcomes in toddlers with congenital heart disease.Pediatric research · 2026Article
- Endotracheal Intubation in Early Life and Its Association with Mental Health Disorders from Childhood to Adolescence: A National Longitudinal Cohort Study up to Age 18.Journal of clinical medicine · 2026Article
- Early cardiac rehabilitation in ICU for infants after complex congenital heart disease surgery: a retrospective case series.Frontiers in pediatrics · 2026Article
- Neurodevelopmental outcomes for pediatric ventricular assist device and heart transplant patients in the modern Era.Frontiers in cardiovascular medicine · 2026Review
- Person- and family-centred care in neonatology: a scoping review to identify existing definitions, models of care, and related categories of interventions.Journal of global health · 2025Article
- The Effect of Behavioral Intervention on Maternal Breastfeeding Practice and Infant Growth in Congenital Heart Disease: A Randomized Controlled Trial.Food science & nutrition · 2025Article
- Mental, behavioural, and developmental disorders among U.S. Children with and without heart conditions, 2016-2021.Cardiology in the young · 2025Article
- Health-Related Quality of Life in Children 4-5 Years After Open Heart Surgery in Early Infancy.CJC pediatric and congenital heart disease · 2025Article
- Cognitive Outcomes and Delirium After Cardiac Neurodevelopmental Program Implementation for Children With Congenital Heart Disease.JAMA network open · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 4 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Developmental disorders, disabilities, and delays are a common outcome for individuals with complex congenital heart disease, yet targeting early factors influencing these conditions after birth and during the neonatal hospitalization for cardiac surgery remains a critical need. The purpose of this science advisory is to (1) describe the burden of developmental disorders, disabilities, and delays for infants with complex congenital heart disease, (2) define the potential health and neurodevelopmental benefits of developmental care for infants with complex congenital heart disease, and (3) identify critical gaps in research aimed at evaluating developmental care interventions to improve neurodevelopmental outcomes in complex congenital heart disease. This call to action targets research scientists, clinicians, policymakers, government agencies, advocacy groups, and health care organization leadership to support funding and hospital-based infrastructure for developmental care in the complex congenital heart disease population. Prioritization of research on and implementation of developmental care interventions in this population should be a major focus in the next decade.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.