ArticleCancer medicine2023
"There's not enough studies": Views of black breast and ovarian cancer patients on research participation.
Article in Cancer medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it, 31 citations in OpenAlex.
- A Review of Medical Mistrust Across the Cancer Continuum of Care and Current Interventions.Journal of community health · 2025Pooled it
- Pooled it
- Exploring Racial Disparities in Awareness and Perceptions of Oncology Clinical Trials: Cross-Sectional Analysis of Baseline Data From the mychoice Study.JMIR cancer · 2024Trial
- Engaging Patient Advocates to Reduce Breast Cancer Disparities: Opportunities to Advance Breast Cancer Research and Engagement.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Speaking Out: Factors Influencing Black Americans' Engagement in COVID-19 Testing and Research.Journal of racial and ethnic health disparities · 2026Article
- Recreational physical activity and biomarkers of breast cancer risk in a cohort of adolescent girls.Breast cancer research : BCR · 2026Article
- Exploring Diabetes Clinical Trial Participation: A Diverse Group Interview Study.Therapeutic innovation & regulatory science · 2026Article
- Supportive Care Needs of Patients with Breast Cancer Who Self-Identify as Black: An Integrative Review.Current oncology (Toronto, Ont.) · 2025Review
- Article
- "The more I know, the more you know" Using culturally responsive marketing strategies to develop tools that increase awareness about clinical trials among Black communities.BMC public health · 2025Article
- Barriers to recruitment in a pre-surgical trial for ductal carcinoma in situ: an exploratory qualitative study of at-risk women, survivors, and providers.Breast cancer research and treatment · 2025Article
- Selection biases in the systematic collection of breast biobank specimens.NPJ breast cancer · 2025Article
- Clinical Trial Discussion and Participation in a Breast Cancer Cohort by Race and Ethnicity.JAMA network open · 2025Article
- Building Better Medicine: Translational Justice and the Quest for Equity in US Healthcare.The American journal of bioethics : AJOB · 2025Article
- Underrepresented populations in genomic research: a qualitative study of researchers' perspectives.BMC medical genomics · 2025Article
- Psychological Safety in the Medical Care of Black Breast and Ovarian Cancer Patients and Families.Psycho-oncology · 2025Article
- Cancer outcomes and cardiopulmonary toxicities for Black patients with breast cancer treated with proton therapy.JNCI cancer spectrum · 2025Article
- Examining recollections of Black women with breast cancer who participated in clinical trials: A grounded practical theory study of patient-provider communication.Contemporary clinical trials communications · 2024Article
- Disparities in cancer clinical trials information-seeking: Findings from the National Cancer Institute's Cancer Information Service.Patient education and counseling · 2024Article
- "There's not enough studies": Views of black breast and ovarian cancer patients on research participation.Cancer medicine · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundBlack breast and ovarian cancer patients are underrepresented in clinical cancer trials disproportionate to the prevalence of these cancers in Black females. Historically, lower enrollment has been attributed to individualized factors, including medical mistrust, but more recently structural factors, including systemic racism, have received additional scrutiny. We interviewed Black women with a personal or family history of breast and ovarian cancer to understand their views and experiences related to research participation.
methodsQualitative interviews were conducted via telephone or video conference and transcribed verbatim. Transcripts were qualitatively analyzed for iterative themes related to the offer and participation in cancer clinical trials and research studies, impact on cancer care, and recommendations to increase enrollment of Black patients.
resultsSixty-one Black women completed an interview. Participants expressed that Black women are underrepresented in cancer research, and that this negatively impacted their own care. Many cited past historical abuses, including the Tuskegee syphilis trial, as a potential factor for lower enrollment but suggested that lower enrollment was better understood in the context of the entirety of their healthcare experiences, including present-day examples of patient mistreatment or dismissal. Participants suggested that proactive community engagement, transparency, and increased representation of Black research team members were strategies likely to foster trust and bolster research participation. CONCLUSION(S): Medical mistrust is only a partial factor in the lower participation of Black patients in cancer research. Researchers should implement the strategies identified by our participants to promote diverse enrollment and ensure that Black patients are included in future therapeutic advances.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.