ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2023
Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years' experience with PRO-algorithm-based patient-clinician interaction (telePRO) in AmbuFlex.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
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Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.
- Electronic patient-reported outcome measures for triaging and scheduling outpatient appointments: a systematic review and meta-analysis.Journal of the American Medical Informatics Association : JAMIA · 2025Pooled it
- "I Want to Spend My Time Living"-Experiences With a Digital Outpatient Service With a Mobile App for Tailored Care Among Adults With Long-Term Health Service Needs: Qualitative Study Using Thematic Analysis.Journal of medical Internet research · 2026Trial
- Patient-Reported Outcome Measures in the Emergency Department: A Scoping Review.Journal of the American College of Emergency Physicians open · 2026Review
- Real-world implementation of electronic patient-reported outcome measures (ePROMs) in routine oncology practice: a scoping review.ESMO real world data and digital oncology · 2026Review
- Application of the CDAS-QoL scale in surgical decision-making for anorectal stricture in Crohn's disease: a diagnostic accuracy study.Scientific reports · 2026Article
- From framework to practice: applying the proteus-practice framework to learn lessons for integrating PROs in clinical care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Investigation of the Content Validity, Feasibility, Internal Consistency, and Construct Validity of 5 Patient-Reported Outcome Questions on Patient Involvement in Care Among Adolescents With Type 1 Diabetes: Multimethods Study.Journal of participatory medicine · 2026Article
- Healthcare Professionals' Experiences of Telemedicine Supporting Outpatient Endometriosis Care: A Qualitative Study of Tele-Patient-Reported Outcome Measures.International journal of environmental research and public health · 2026Article
- A generic and adaptable model of developing, implementing, and maintaining patient-reported outcomes in clinical practice - the AmbuFlex model.Journal of patient-reported outcomes · 2026Article
- Do non-responders of a geriatric screening questionnaire face lower one-year survival compared to responders? A retrospective cohort study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Clinical follow-up using patient-reported outcome (PRO) for patients with lymphoma and chronic lymphocytic leukemia in a hematological outpatient clinic: a Danish prospective study.Scientific reports · 2026Article
- Towards personalised follow-up care in ovarian cancer using online remote PROMs monitoring: a study protocol of a feasibility trial.BMJ open · 2026Article
- Insights from using patient-reported outcomes as an intervention during cancer treatment in Denmark: potential reasons for limited effectiveness.Health and quality of life outcomes · 2025Article
- Using a Patient-Reported Outcome (PRO) Questionnaire to Assess Postoperative Care Following Pediatric Outpatient Surgery.Paediatric anaesthesia · 2025Article
- Validation and Acceptability of the Mobile App Version of the Control of Allergic Rhinitis and Asthma Test for Children (CARATKids): Cross-Sectional Study.JMIR pediatrics and parenting · 2025Article
- Expert consensus on implementing patient-reported outcomes in telehealth: findings from an international Delphi study.Journal of patient-reported outcomes · 2025Article
- Determinants of Dropping Out of Remote Patient-Reported Outcome-Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study.JMIR formative research · 2025Article
- A scoping review of the electronic collection and capture of patient reported outcome measures for children and young people in the hospital setting.PLOS digital health · 2025Article
- Routine use of patient-reported experience and outcome measures for children and young people: a scoping review.Systematic reviews · 2024Article
- Remote symptom monitoring with patient-reported outcome measures in outpatients with chronic kidney disease (PROKID): a multicentre randomised controlled non-inferiority study.Clinical kidney journal · 2024Article
Corrections and comments
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Authors and funding
20 authors at 7 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient-reported Outcome (PRO) measures may be used as the basis for out-patient follow-up instead of fixed appointments. The patients attend follow-up from home by filling in questionnaires developed for that specific aim and patient group (telePRO). The questionnaires are handled in real time by a specific algorithm, which assigns an outcome color reflecting clinical need. The specific questionnaires and algorithms (named solutions) are constructed in a consensus process with clinicians. We aimed to describe AmbuFlex' telePRO solutions and the algorithm outcomes and variation between patient groups, and to discuss possible applications and challenges.
methodsTelePRO solutions with more than 100 processed questionnaires were included in the analysis. Data were retrieved together with data from national registers. Characteristics of patients, questionnaires and outcomes were tabulated for each solution. Graphs were constructed depicting the overall and within-patient distribution of algorithm outcomes for each solution.
resultsFrom 2011 to 2021, 29 specific telePRO solutions were implemented within 24 different ICD-10 groups. A total of 42,015 patients were referred and answered 171,268 questionnaires. An existing applicable instrument with cut-off values was available for four solutions, whereas items were selected or developed ad hoc for the other solutions. Mean age ranged from 10.7 (Pain in children) to 73.3 years (chronic kidney disease). Mortality among referred patients varied between 0 (obesity, asthma, endometriosis and pain in children) and 528 per 1000 patient years (Lung cancer). There was substantial variation in algorithm outcome across patient groups while different solutions within the same patient group varied little. DISCUSSION: TelePRO can be applied in diseases where PRO can reflect clinical status and needs. Questionnaires and algorithms should be adapted for the specific patient groups and clinical aims. When PRO is used as replacement for clinical contact, special carefulness should be observed with respect to patient safety.
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