Evidence map›Paper›PMID 36639219›Full record

ArticleBMJ open2023

Mental health and well-being of unpaid caregivers: a cross-sectional survey protocol.

Monica Parry, Ron Beleno, Rinat Nissim, Deborah Baiden, Pamela Baxter, Raquel Betini, Ann Kristin Bjørnnes, Heather Burnside, Daniel Gaetano, Salima Hemani and 19 more

Abstract read
In one paragraph

Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

29 authors.

Monica ParryLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada monica.parry@utoronto.ca.ORCID 0000-0002-6941-1380
Ron BelenoPatient Partner (Caregiver), AGE WELL, University Health Network, Toronto, Ontario, Canada.
Rinat NissimDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.ORCID 0000-0002-3624-5806
Deborah BaidenLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Pamela BaxterSchool of Nursing, McMaster University, Hamilton, Ontario, Canada.
Raquel BetiniResearcher, interRAI, Waterloo, Ontario, Canada.
Ann Kristin BjørnnesDepartment of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway.ORCID 0000-0002-5356-3873
Heather BurnsideLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Daniel GaetanoPatient Partner (Caregiver), Dementia Canada, Calgary, Alberta, Canada.
Salima HemaniLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Jane McCarthyDirector, Programs and Services, The Ontario Caregiver Organization, Toronto, Ontario, Canada.
Nicole NickersonPatient Partner (Caregiver), Canadian Women's Heart Health Alliance, Halifax, Nova Scotia, Canada.
Colleen NorrisFaculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
Mats Nylén-EriksenDepartment of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway.
Tasneem OwadallyLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Louise PiloteGeneral Internal Medicine, McGill University, Montreal, Quebec, Canada.ORCID 0000-0002-6159-0628
Kyle WarkentinPatient Partner (Caregiver), Gender Outcomes International Group, Vancouver, British Columbia, Canada.
Amy CoupalChief Executive Officer, The Ontario Caregiver Organization, Toronto, Ontario, Canada.
Samya HasanExecutive Director, Council of Agencies Serving South Asians, Toronto, Ontario, Canada.
Mabel HoDirector, Education and Research, Yee Hong Centre for Geriatric Care, Scarborough, Ontario, Canada.
Olivia KulbakPolicy Analyst, Canadian Cancer Society, Toronto, Ontario, Canada.
Shan MohammedLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Laura MullalyManager, Knowledge Mobilization, Mental Health Commission of Canada, Ottawa, Ontario, Canada.
Jenny TheriaultExecutive Director, Caregivers Nova Scotia, Halifax, Nova Scotia, Canada.
Nancy WayneExecutive Director, Canadian Black Policy Network, Toronto, Ontario, Canada.
Wendy WuPatient Partner (Caregiver), North York Toronto Health Partners, Toronto, Ontario, Canada.
Eunice K YeboahExecutive Director, Canadian Black Policy Network, Toronto, Ontario, Canada.
Arland O'HaraLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Elizabeth PeterLawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.

Funding

CIHR 469551
6 · The paper itself

Abstract

introductionUnpaid caregiving, care provided by family/friends, is a public health issue of increasing importance. COVID-19 worsened the mental health conditions of unpaid caregivers, increasing substance/drug use and early development of chronic disease. The impact of the intersections of race and ethnicity, sex, age and gender along with unpaid care work and caregivers' health and well-being is unknown. The aim of this study is to describe the inequities of caregiver well-being across the intersections of race and ethnicity, sex, age and gender using a cross-sectional survey design. METHODS AND ANALYSIS: We are collaborating with unpaid caregivers and community organisations to recruit a non-probability sample of unpaid caregivers over 18 years of age (n=525). Recruitment will focus on a target sample of 305 South Asian, Chinese and Black people living in Canada, who represent 60% of the Canadian racial and ethnic populations. The following surveys will be combined into one survey: Participant Demographic Form, Caregiver Well-Being Index, interRAI Self-report of Carer Needs and the GENESIS (GENdEr and Sex DetermInantS of Cardiovascular Disease: From Bench to Beyond-Premature Acute Coronary Syndrome) PRAXY Questionnaire. Sample characteristics will be summarised using descriptive statistics. The scores from the Caregiver Well-Being Index will be dichotomised into fair/poor and good/excellent. A two-stage analytical strategy will be undertaken using logistic regression to model fair/poor well-being and good/excellent well-being according to the following axes of difference set a priori: sex, race and ethnicity, gender identity, age, gender relations, gender roles and institutionalised gender. The first stage of analysis will model the main effects of each factor and in the second stage of analysis, interaction terms will be added to each model. ETHICS AND DISSEMINATION: The University of Toronto's Health Sciences Research Ethics Board granted approval on 9 August 2022 (protocol number: 42609). Knowledge will be disseminated in pamphlets/infographics/email listservs/newsletters and journal articles, conference presentation and public forums, social media and through the study website. TRIAL REGISTRATION NUMBER: This is registered in the Open Sciences Framework with a Registration DOI as follows: https://doi.org/10.17605/OSF.IO/PB9TD.

Indexed as

CaregiversCOVID-19AdolescentAdultCanadaCross-Sectional StudiesFemaleGender IdentityHumansMaleMental HealthMENTAL HEALTHPUBLIC HEALTHQuality in health care

Identifiers

PMID36639219
PMCPMC9843178

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.