Evidence map›Paper›PMID 36633003›Full record

ReviewCirculation. Cardiovascular quality and outcomes2023

Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association.

Elizabeth D Blume, Roxanne Kirsch, Melissa K Cousino, Jennifer K Walter, Jill M Steiner, Thomas A Miller, Desiree Machado, Christine Peyton, Emile Bacha, Emily Morell and 1 more

Open access · bronzeAbstract readReview
In one paragraph

Review in Circulation. Cardiovascular quality and outcomes, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed, 2 pooled it
12.7field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 2 syntheses or guidelines pooled it, 59 citations in OpenAlex.

  1. Pooled it
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  6. Current foetal cardiology practice in Italian centres: a survey among SICP members.International journal of cardiology. Congenital heart disease · 2026
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  11. Surgeon Perspectives on Cleft Lip and Palate Repair in Patients With Life-Limiting and Terminal Illnesses: An ACPA Member Survey.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
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  17. Management of Pediatric Heart Failure.Korean circulation journal · 2024
    Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 3 institutions in 2 countries.

Elizabeth D Blume
Roxanne Kirsch
Melissa K Cousino
Jennifer K Walter
Jill M Steiner
Thomas A Miller
Desiree Machado
Christine Peyton
Emile Bacha
Emily Morell
American Heart Association Pediatric Heart Failure and Transplantation Committee of the Council on Lifelong Congenital Heart Disease and Heart Health in the Young
Reed Medical (United Kingdom) · GBRudolf Steiner College · USSt. Elizabeth Healthcare · US

Funding

Supplement to Improving Family Meetings in the Pediatric CICUK23HL141700 · NHLBI · CHILDREN'S HOSP OF PHILADELPHIA · PI WALTER, JENNIFER K · 2019 to 2023
$981k
Palliative and End of Life Care in Adolescent and Young Adult Heart FailureK23HL145096 · NHLBI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI COUSINO HOOD, MELISSA KAYE · 2019 to 2022
$513k
NHLBI NIH HHS K23 HL141700NHLBI NIH HHS K23 HL145096
6 · The paper itself

Abstract

aimThis summary from the American Heart Association provides guidance for the provision of primary and subspecialty palliative care in pediatric congenital and acquired heart disease.

methodsA comprehensive literature search was conducted from January 2010 to December 2021. Seminal articles published before January 2010 were also included in the review. Human subject studies and systematic reviews published in English in PubMed, ClinicalTrials.gov, and the Cochrane Collaboration were included. Structure: Although survival for pediatric congenital and acquired heart disease has tremendously improved in recent decades, morbidity and mortality risks remain for a subset of young people with heart disease, necessitating a role for palliative care. This scientific statement provides an evidence-based approach to the provision of primary and specialty palliative care for children with heart disease. Primary and specialty palliative care specific to pediatric heart disease is defined, and triggers for palliative care are outlined. Palliative care training in pediatric cardiology; diversity, equity, and inclusion considerations; and future research directions are discussed.

Indexed as

CardiologyHeart DiseasesAdolescentAmerican Heart AssociationChildHumansLongevityPalliative CareUnited StatesAHA Scientific Statementscardiologycongenital heart diseaseheart diseasesmorbiditypalliative carepediatric

Identifiers

PMID36633003
PMCPMC10472747
OpenAlexW4315700845

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.