ArticleJournal of autism and developmental disorders2024
Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care.
Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 2 syntheses or guidelines pooled it, 37 citations in OpenAlex.
- Systematic Review: The Psychosocial Impacts of Autism-Related Genetic Testing.Journal of the American Academy of Child and Adolescent Psychiatry · 2026Pooled it
- Parent concerns prior to an assessment of autism spectrum disorder: A systematic review.Autism : the international journal of research and practice · 2025Pooled it
- From Recognition to Diagnosis: Caregiver Response, Help-Seeking Pathways, and Access-Related Factors Associated with Autism Diagnostic Delay in Jordan.Children (Basel, Switzerland) · 2026Article
- Parent Support Group for Korean Immigrant Families of Individuals With Autism and Developmental Disabilities: Use of Academic-Community Partnership.American journal of speech-language pathology · 2026Article
- Child Autism Spectrum Disorder Following Maternal Abuse and Trauma History.Journal of autism and developmental disorders · 2026Article
- Black Caregiver Perspectives During a Developmental Diagnostic Interview.Journal of autism and developmental disorders · 2026Article
- "I'm His Voice": Parent Perspectives on Obtaining an Autism Diagnosis and Services and the Influence of Personal and Cultural Factors.Journal of autism and developmental disorders · 2026Article
- Autistic Adults and Loved Ones' Experiences of a Later Life Diagnosis.Journal of autism and developmental disorders · 2026Article
- An Examination of Racial Bias in Scoring the Autism Diagnostic Observation Schedule (ADOS) Module 3: An Item Response Theory Analysis.Autism research : official journal of the International Society for Autism Research · 2026Article
- Understanding disparities in autism diagnosis and care: A socioecological perspective.PLOS mental health · 2026Article
- The Role of Stigma in the Autism Diagnostic and Intervention Process: Perspectives of Black Families in the Southeastern US.Journal of autism and developmental disorders · 2025Article
- Common and rare variant genetic contributions in African Americans with autism.medRxiv : the preprint server for health sciences · 2025Article
- Language impairment in autistic adolescents and young adults: Variability by definition.medRxiv : the preprint server for health sciences · 2025Article
- Screening Options in Autism Telediagnosis: Examination of TAP, M-CHAT-R, and DCI Concordance and Predictive Value in a Telediagnostic Model.Journal of autism and developmental disorders · 2025Article
- The development and utilization of a diversity advisory board in an intervention to support social skill development for autistic transition-aged youth.Autism : the international journal of research and practice · 2025Article
- Introduction to the Forum: Intersectional Approaches to Language in Autism.Perspectives of the ASHA special interest groups · 2025Article
- Autism, Obesity, and PTSD Among Adolescents and Young Adults: An Analysis of National Medicaid Claims Data.Journal of autism and developmental disorders · 2025Article
- Policing Black autistic children: A qualitative approach to understanding Black caregivers' concerns.Autism : the international journal of research and practice · 2025Article
- Exploring Factors of Diagnostic Timing Among Black Autistic Youth.Journal of autism and developmental disorders · 2025Article
- Differences Between Black and White Caregivers in the Association Between Autism Diagnostic Process Satisfaction and Service Use.Journal of autism and developmental disorders · 2025Article
Corrections and comments
- Commented on by
Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
purposeDespite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children.
methodsWe surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families' experiences of care providers and systems, and the impact of race and culture on accessing care.
resultsFamilies provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism.
conclusionsResults add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.