Evidence map›Paper›PMID 36625538›Full record

ArticleBirth (Berkeley, Calif.)2023

Birth includes us: Development of a community-led survey to capture experiences of pregnancy care among LGBTQ2S+ families.

Molly R Altman, Kase Cragg, Teresa van Winkle, Zoë Julian, Juno Obedin-Maliver, Lesley A Tarasoff, Meghan K Eagen-Torkko, Brittany L Ferrell, Nicholas A Rubashkin, Indra Lusero and 1 more

Erratum issuedOpen access · greenAbstract read
In one paragraph

Article in Birth (Berkeley, Calif.), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
4.3field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 13 citations in OpenAlex.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

11 authors at 10 institutions in 3 countries.

Molly R AltmanDepartment of Child, Family, and Population Health Nursing, University of Washington, Seattle, Washington, USA.ORCID 0000-0002-0453-0469
Kase CraggDepartment of Health Systems and Population Health, School of Public Health, University of Washington, Seattle, Washington, USA.
Teresa van WinkleDepartment of Child, Family, and Population Health Nursing, University of Washington, Seattle, Washington, USA.
Zoë JulianDepartment of Obstetrics and Gynecology, Wellstar Kennestone Regional Medical Center, Marietta, Georgia, USA.ORCID 0000-0001-8799-5431
Juno Obedin-MaliverDepartment of Obstetrics and Gynecology, Stanford University School of Medicine, Stanford, California, USA.ORCID 0000-0002-0945-2842
Lesley A TarasoffDepartment of Health & Society, University of Toronto Scarborough, Scarborough, Ontario, Canada.ORCID 0000-0001-5130-8660
Meghan K Eagen-TorkkoUniversity of Washington Bothell School of Nursing & Health Studies, Bothell, Washington, USA.ORCID 0000-0001-9064-6494
Brittany L FerrellWashington University in St. Louis, Goldfarb School of Nursing, St. Louis, Missouri, USA.
Nicholas A RubashkinDivision of Hospitalist Medicine, Department of Obstetrics, Gynecology& Reproductive Sciences, Institute for Global Health Sciences, University of California San Francisco, San Francisco, California, USA.
Indra LuseroElephant Circle, Denver, Colorado, USA.
Saraswathi VedamBirth Place Lab, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.ORCID 0000-0001-6396-3638
University of Washington · USSave the Elephants · KEStanford University · USUniversity of British Columbia · CAUniversity of California, San Francisco · USUniversity of Toronto · CAUniversity of Washington Bothell · USWashington State Department of Health · USWashington University in St. Louis · USWellStar Kennestone Hospital · US

Funding

PRIDEnet for the All of Us Research Program OT2OD025276 · OD · STANFORD UNIVERSITY · PI LUNN, MITCHELL RYAN, OBEDIN-MALIVER, JUNO · 2017 to 2024
$13.0M
WOMEN'S REPRODUCTIVE HEALTH RESEARCH CENTERK12HD001262 · NICHD · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Andrea Vashti Jackson · 1998 to 2026
$9.3M
Perinatal Social Support in Underserved and Minority PopulationsF31NR019203 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI SOLED, KODIAK · 2020 to 2021
$92k
NICHD NIH HHS K12 HD001262NIH HHS OT2 OD025276NINR NIH HHS F31 NR019203
6 · The paper itself

Abstract

backgroundLimited research captures the intersectional and nuanced experiences of lesbian, gay, bisexual, transgender, queer, two-spirit, and other sexual and gender-minoritized (LGBTQ2S+) people when accessing perinatal care services, including care for pregnancy, birth, abortion, and/or pregnancy loss.

methodsWe describe the participatory research methods used to develop the Birth Includes Us survey, an online survey study to capture experiences of respectful perinatal care for LGBTQ2S+ individuals. From 2019 to 2021, our research team in collaboration with a multi-stakeholder Community Steering Council identified, adapted, and/or designed survey items which were reviewed and then content validated by community members with lived experience.

resultsThe final survey instrument spans the perinatal care experience, from preconception to early parenthood, and includes items to capture experiences of care across different pregnancy roles (eg, pregnant person, partner/co-parent, intended parent using surrogacy) and pregnancy outcomes (eg, live birth, stillbirth, miscarriage, and abortion). Three validated measures of respectful perinatal care are included, as well as measures to assess experiences of racism, discrimination, and bias across intersections of identity. DISCUSSION AND

conclusionsBy centering diverse perspectives in the review process, the Birth Includes Us instrument is the first survey to assess the range of experiences within LGBTQ2S+ communities. This instrument is ready for implementation in studies that seek to examine geographic and identity-based perinatal health outcomes and care experiences among LGBTQ2S+ people.

Indexed as

Homosexuality, FemaleSexual and Gender MinoritiesTransgender PersonsFemaleHumansMaleParturitionPregnancySexual Behaviorcommunity-based participatory researchLGBTQ personspregnancyrespectful care

Identifiers

PMID36625538
PMCPMC10332260
OpenAlexW4315435942

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.