ArticleHealth expectations : an international journal of public participation in health care and health policy2023
A framework for implementing Patient and Public Involvement in mental health research: The PATHWAY research programme benchmarked against NIHR standards.
Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed.
- How, why, for whom, and in what contexts organisational and team dynamics shape, and are shaped by, service user researchers in higher education mental health research centres: a realist review protocol.Research involvement and engagement · 2026Review
- Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review.The patient · 2026Article
- Exploration of Factors That Affect Engagement With the Experience Sampling Method and Service Users' Experience of This Within the AVATAR2 Trial: Mixed Methods Study.JMIR formative research · 2025Article
- Co-production in sleep research: A scoping review of current practices and future directions.Journal of sleep research · 2025Article
- Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.BMC psychiatry · 2025Review
- Integrating patient and public involvement during the COVID-19 pandemic: lessons from COVID-clinical neuroscience study.Research involvement and engagement · 2025Article
- "We're all in this together": patient and public involvement and engagement in developing a new psychosocial intervention for adults with an intellectual disability who display aggressive challenging behaviour.Research involvement and engagement · 2025Article
- A multi-person reflection on using public and patient involvement and engagement to develop dementia research.Research involvement and engagement · 2025Article
- Content, implementation, and evaluation of capacity-strengthening initiatives for public and patient involvement in mental health research: a scoping review protocol informed by implementation science.HRB open research · 2025Article
- Involving stakeholders with lived and professional experience in a realist review of community mental health crisis services: a commentary.Research involvement and engagement · 2024Article
- Young people's perspectives on policies to create healthier food environments in England.Health promotion international · 2024Article
- Evaluating a grant development public involvement funding scheme: a qualitative document analysis.Research involvement and engagement · 2024Article
- Article
- A framework for implementing Patient and Public Involvement in mental health research: The PATHWAY research programme benchmarked against NIHR standards.Health expectations : an international journal of public participation in health care and health policy · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundPatient and Public Involvement (PPI) in research has become a key component recommended by research commissioners, grant award bodies and specified in government policies. Despite the increased call for PPI, few studies have demonstrated how to implement PPI within large-scale research studies.
objectiveThe aim of the current study was to provide a case example of the implementation of a patient advisory group in a large-scale mental health research programme (PATHWAY) and to benchmark this against UK standards.
methodA PPI group was incorporated throughout the PATHWAY research programme, from grant development to dissemination. The group attended regular meetings and supported participant recruitment, evaluated patient-facing documents, supported the piloting of the research intervention and co-developed the dissemination and impact strategy. The implementation of PPI throughout the project was benchmarked against the UK standards for PPI.
resultsThe inclusion of PPI in the PATHWAY project provided tangible changes to the research project (i.e., improving study documents, co-developing dissemination materials) but also proved to be a beneficial experience to PPI members through the development of new skills and the opportunity to provide a patient voice in research. We show how PPI was involved across seven study phases and provide examples of implementation of the six UK standards. The study did not include PPI in data analysis but met all the UK standards for PPI. Challenges regarding practical components (i.e., meeting frequency, language use), increasing diversity and PPI members' knowledge of research were highlighted as areas for further improvement.
conclusionsWe provide a case example of how PPI can be implemented throughout a research lifecycle and we note the barriers faced and make suggestions for PPI in future implementation and research. PATIENT AND PUBLIC CONTRIBUTION: PPI members were involved throughout the lifecycle of the research programme. The PPI lead was a co-author on the manuscript and contributed to report writing.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.