ArticleCanadian journal of gastroenterology & hepatology2022
Diagnostic Delay in Coeliac Disease: A Survey among Danish Patients.
Article in Canadian journal of gastroenterology & hepatology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 20 citations in OpenAlex.
- Diagnostic delay in children with coeliac disease: a national multicentre study in Turkey.BMC gastroenterology · 2026Article
- Registered Sick Leave in Celiac Disease: A Register-Based Nationwide Cohort Study.Gastro hep advances · 2026Article
- [Drug Excipients. Necessary, but not Harmless].Farmaceuticos comunitarios · 2025Review
- Delay in Celiac Disease Diagnosis Among Patients with High-Risk Screening Conditions: Results from a United States Claims Database.Journal of clinical medicine · 2025Article
- Machine learning-based prediction of celiac antibody seropositivity by biochemical test parameters.Scientific reports · 2025Article
- Celiac Disease in Medical Education: A Pilot Study Comparing Institutional and Commercial Curricula.Medical science educator · 2025Article
- One-Year Outcomes Among Children Identified With Celiac Disease Through a Mass Screening Program.Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association · 2025Article
- The Relation between Celiac Disease and Ovarian Reserve: A Case-Control Study.International journal of fertility & sterility · 2025Article
- Patient preferences for the diagnosis of coeliac disease: A discrete choice experiment.United European gastroenterology journal · 2025Article
- Epidemiology of Celiac Disease in Cantabria, Spain.Diagnostics (Basel, Switzerland) · 2025Article
- Micronutrient Deficiencies as Early Signs of Celiac Disease: Exemplified by Two Cases.Canadian journal of gastroenterology & hepatology · 2025Article
- Insights into coeliac disease diagnosis: a 2021-2023 overview of diagnostic approach and delays in children in Slovenia.Wiener medizinische Wochenschrift (1946) · 2024Article
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Coeliac disease affects around 1% of the population, although many cases remain undiagnosed. Underdiagnosis and diagnostic delay in coeliac disease may cause health complications and be a burden for both the patient and society. Casuistic reports indicate that the diagnostic delay may be significant in Danish patients. Aim: To investigate the diagnostic delay among Danish patients with coeliac disease. Methods: We performed a survey among coeliac disease patients to investigate the diagnostic delay. A web-based questionnaire was sent to all members of The Danish Coeliac Society. Results: The questionnaire was completed by 1,392 individuals with a diagnosis of coeliac disease (78.1% women; mean age: 42.8 years). The mean delay was 1.8 (SD 5.0) years from the first symptom to the first health care contact and 5.8 (SD 9.5) years from the first symptom to diagnosis; 18.6% of the participants reported a total diagnostic delay of more than 10 years. Among the patient-reported reasons for delay were misunderstandings, unspecific symptoms, and a lack of knowledge or focus on coeliac disease among the doctors. In total, 52.7% rated the time to diagnosis to have been "too long," and 20.1% were not satisfied with the diagnostic process. However, the majority were "to some extent" or "very" satisfied with the diagnostic process. Conclusion: We found evidence of a significant diagnostic delay among Danish patients with coeliac disease. This was primarily due to the delay from the time of first health care contact to the time of diagnosis. This study highlights the importance of raising awareness of coeliac disease among health care professionals.
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