Evidence map›Paper›PMID 36612450›Full record

ArticleInternational journal of environmental research and public health2022

iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers.

Patricia Masterson-Algar, Kieren Egan, Greg Flynn, Gwenllian Hughes, Aimee Spector, Joshua Stott, Gill Windle

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Interventions to support young carers/supporters of people living with dementia: a mixed methods systematic review.International journal of qualitative studies on health and well-being · 2026
    Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias.International journal of environmental research and public health · 2023
    Article
  11. Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers.International journal of environmental research and public health · 2023
    Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Patricia Masterson-AlgarSchool of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.ORCID 0000-0001-6344-1346
Kieren EganDepartment of Computer and Information Science, University of Strathclyde, Glasgow G11 XH, UK.ORCID 0000-0002-1639-4281
Greg FlynnSchool of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.
Gwenllian HughesSchool of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.
Aimee SpectorDepartment of Clinical, Educational and Health Psychology, University College London, London WC1E 6BT, UK.
Joshua StottDepartment of Clinical, Educational and Health Psychology, University College London, London WC1E 6BT, UK.
Gill WindleSchool of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.

Funding

National Institute for Health Research NIHR130914
6 · The paper itself

Abstract

Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly due to the COVID pandemic, have moved online and have been shown to be acceptable as they are low cost and reduce access barriers. iSupport is an evidence-informed e-health training programme developed by the World Health Organization (WHO) to support adult dementia carers. This paper reports on the co-design of an adapted version of iSupport for young carers. A theoretically driven co-design approach, drawing on the lived experiences of young dementia carers and experts who work with this target group was followed. As a result of this study iSupport for Young Carers was created. It is the first e-health intervention of its kind and aims to support the mental health, knowledge and skills of young dementia carers. In turn, it could improve the quality of the support that service providers can offer, and this can result in increased levels of identification of these young people. The work presented also provides opportunities for other countries and demographic groups to translate and adapt iSupport for Young Carers to their specific cultural context.

Indexed as

COVID-19DementiaTelemedicineAdolescentAdultCaregiversHumansMental Healthco-designdementiae-healthyoung carer

Identifiers

PMID36612450
PMCPMC9819145

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.