ArticleAutism in adulthood2022
Exploring the Experience of Seeking an Autism Diagnosis as an Adult.
Article in Autism in adulthood, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 72 citations in OpenAlex.
- Systematic review of measures and interventions for caregiver adjustment to child autism diagnosis.Autism : the international journal of research and practice · 2026Pooled it
- Feasibility and Acceptability of an AI-Driven Conversational Platform for Structured Autism History Taking and Referral Support: Mixed Methods Proof-of-Concept Study.JMIR formative research · 2026Article
- The Role of Self-Concept Clarity in the Relations Between Disordered Eating, Gender Diversity, and Autistic and ADHD Traits.Archives of sexual behavior · 2026Article
- Community views on the assessment and diagnosis of autism: Principles to guide clinical practice.Autism : the international journal of research and practice · 2026Article
- Priorities for change for autistic people across Europe.Molecular autism · 2026Article
- Autistic Adults and Loved Ones' Experiences of a Later Life Diagnosis.Journal of autism and developmental disorders · 2026Article
- Exploring auditory perception experiences in daily situations in autistic adults.Autism : the international journal of research and practice · 2026Article
- Comparative analysis of diagnostic expectations between adults referred for ADHD and autism assessment: a thematic analysis.Frontiers in psychiatry · 2026Article
- Lived Experience, Family, and Clinician Perspectives on Barriers to Adult Autism Diagnosis and Post-Diagnostic Supports: A Mixed-Methods Systematic Review.Journal of developmental and physical disabilities · 2026Article
- Misunderstood, Minimised, Misrepresented: Autistic Young Adults' Experiences of Epistemic Injustices in Healthcare Interactions Around Autism.Sociology of health & illness · 2026Article
- Contextual factors influencing neuro-affirming practice: Identifying what helps or hinders implementation in health and social care.Autism : the international journal of research and practice · 2025Article
- Patient Expectations of an Autism Diagnosis: A Thematic Analysis.Journal of autism and developmental disorders · 2025Article
- A Qualitative Study of the Diagnostic Experiences of Young Autistic Adults in China.Journal of autism and developmental disorders · 2025Article
- The Codesign and Initial Evaluation of a Peer Support Program for Autistic Young Adults.Autism in adulthood · 2025Article
- "One must think autism in everything one does": Clinicians' Experiences of Supporting Autistic Patients.Journal of autism and developmental disorders · 2025Article
- Diagnostic Experiences and Barriers to Diagnosis Among Autistic Adults in the United States: Associations with Diagnostic Timing and Gender.Journal of autism and developmental disorders · 2025Article
- Diagnostic challenges of autism spectrum disorder in women without intellectual or language impairments: a narrative review.Journal of medicine and life · 2025Review
- "I'm not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack".Autism : the international journal of research and practice · 2025Article
- Sounding the Alarm: Calling on Service Providers to Reduce Disparities in Autism Services for Latino Adults.Hispanic journal of behavioral sciences · 2025Article
- "From That Moment, Everything has Changed": The Experience of Women With Anorexia Nervosa Receiving a Diagnosis of Autism.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Emerging research suggests that seeking an autism diagnosis as an adult is usually difficult and time-consuming but brings relief once a diagnosis is made. This study explored the experience of the pathway to an autism diagnosis during adulthood for adults living in Australia. Methods: We conducted a qualitative phenomenological study and interviewed 13 adults who identified as autistic about their pathway to autism diagnosis in their mode of choice. Spoken interviews were transcribed verbatim, and transcripts were analyzed by using a thematic approach. Results: Data analysis resulted in 6 themes and 20 meaning units that described the experiences of adults seeking an autism diagnosis in Australia. These themes involved two interwoven journeys that spanned before, during, and after the diagnostic process. The personal journey involved feeling different, considering autism, and living as autistic, whereas the clinical journey involved missed opportunities, varied diagnostic experiences, and absent supports. Conclusions: Given the potential benefits for adults obtaining a formal autism diagnosis and accessing post-diagnostic supports, it is important that health professionals and governments collaborate to reduce access barriers and ensure adequate services are available. The findings from this study informed the development of Australia's national guideline for autism diagnosis.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.