ArticleJournal of eating disorders2023
A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope.
Article in Journal of eating disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
45 citing papers in PubMed, 1 synthesis or guideline pooled it, 51 citations in OpenAlex.
- Assisted death in eating disorders: a systematic review of cases and clinical rationales.Frontiers in psychiatry · 2024Pooled it
- From 'Lack of Insight' to Being a Knower: A Personal Turning Point in Psychiatric Inpatient Care.Journal of psychiatric and mental health nursing · 2026Article
- Effectiveness without safety: a response to Duggan, Hardy, and Waller (2026).Journal of eating disorders · 2026Article
- Iatrogenic Harm, Psychotherapy, and Eating Disorders: An Urgent Call to Action.International journal of mental health nursing · 2026Article
- Iatrogenic harm and premature treatment discontinuation in eating disorders: a lived experience response to Wade and Schmidt (2026).Journal of eating disorders · 2026Article
- Operationalising adult eating disorders admission criteria in Australian emergency departments: a clinical decision-support approach.Journal of eating disorders · 2026Article
- Narrative Review of Catatonia in Psychosis and Eating Disorders: Common Intersections and Treatment Considerations.Early intervention in psychiatry · 2026Review
- Iatrogenic harm in eating disorder treatment: a lived experience-led call for epistemic justice and accountability.Journal of eating disorders · 2026Article
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- Interpersonal wounds and identity among people with anorexia nervosa: a qualitative content analysis of autobiographical memories elicited by disgust-related cues.Journal of eating disorders · 2026Article
- Professional Responsibility Governed by a Risk-Oriented Care Logic: Nursing Staff's Experiences of Caring for Persons With Anorexia Nervosa in General Psychiatric Inpatient Care.International journal of mental health nursing · 2026Article
- "Always, always have hope:" persons with lived experience, carers and health professionals' experiences before and after discharge from hospital for an eating disorder.Journal of eating disorders · 2026Article
- Dismantling the Diagnostic Construct of Borderline Personality Disorder: A Critical Discourse Analysis.International journal of mental health nursing · 2026Article
- Cognitive behavioural therapy is not universally evidence-based: implications for eating disorders.Journal of eating disorders · 2026Article
- Investigation of associations between self-reported sensory processing, eating disorder symptoms, neurodivergence, and gender congruence from a lived experience lens.Journal of eating disorders · 2026Article
- The importance of learning from people with lived experiences of eating disorders.Journal of eating disorders · 2026Article
- Self-reported interoceptive sensibility across eating disorder symptoms: associations with sociodemographic factors.Journal of eating disorders · 2026Article
- Key features of illness and treatment experiences in longstanding anorexia nervosa: qualitative descriptive study.BJPsych open · 2025Article
- "Being kept alive-but not being supported to live": experiences of general psychiatric inpatient care among persons with anorexia nervosa.Journal of eating disorders · 2025Article
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The ethical approach to treatment non-response and treatment refusal in severe-enduring anorexia nervosa (SE-AN) is the source of significant ethical debate, particularly given the risk of death by suicide or medical complications. A recent article proposed criteria to define when anorexia nervosa (AN) can be diagnosed as 'terminal' in order to facilitate euthanasia or physician-assisted suicide (EAS), otherwise known as medical assistance in dying, for individuals who wish to be relieved of suffering and accept treatment as 'futile'. This author utilises their personal lived experience to reflect on the issues raised, including: treatment refusal, iatrogenic harm, suicidality and desire to end suffering, impact of diagnosis/prognosis, schemas, alexithymia, countertransference, ambivalence, and holding on to hope. Within debates as critical as the bioethics of involuntary treatment, end-of-life and EAS in eating disorders, it is crucial that the literature includes multiple cases and perspectives of individuals with SE-AN that represent a wide range of experiences and explores the complexity of enduring AN illness, complex beliefs, communication patterns and relational dynamics that occur in SE-AN.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.