ArticleFrontiers in psychology2022
"Double awareness"-adolescents and young adults coping with an uncertain or poor cancer prognosis: A qualitative study.
Article in Frontiers in psychology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 16 citations in OpenAlex.
- Navigating Prognostic Dialogue During Serious Illness Conversations.JAMA network open · 2026Trial
- Improving quality of care for patients with high-grade glioma and their informal caregivers: Insights from focus groups with healthcare professionals.Neuro-oncology practice · 2026Article
- Coping with an Uncertain or Poor Cancer Prognosis as an Adolescent or Young Adult: A Cross-Sectional Cluster Analysis.Current oncology (Toronto, Ont.) · 2026Article
- Impact of cancer during reproductive age on the probability of livebirth after cancer: a register-based cohort study among Danish women aged 18-39 with and without cancer.Journal of cancer survivorship : research and practice · 2026Article
- Validation of the Double Awareness Scale: A Novel Measure of Psychological Adaptation to Advanced Cancer.Psycho-oncology · 2026Article
- Medical Coping as a Mediator Between Social Support and Illness Uncertainty in Cancer Patients Across Age Groups: A Mediation Analysis.Patient preference and adherence · 2026Article
- 5-Year conditional relative survival of adolescents and young adults with solid malignancies in the Netherlands: a population-based cohort study.The Lancet regional health. Europe · 2025Article
- The Co-Creation of a Psychosocial Support Website for Advanced Cancer Patients Obtaining a Long-Term Response to Immunotherapy or Targeted Therapy.Current oncology (Toronto, Ont.) · 2025Article
- Patient-Centered Care for Adolescents and Young Adults with an Uncertain or Poor Cancer Prognosis: A Secondary Analysis of What Is Needed According to Patients, Caregivers, and Healthcare Providers.Current oncology (Toronto, Ont.) · 2025Article
- Vulnerability situations of adolescents and young people from rural areas undergoing cancer treatment.Revista da Escola de Enfermagem da U S P · 2025Article
- The double awareness of the wish to hasten death and the will to live: A secondary analysis of outlier patients from a mixed-methods study.Palliative medicine · 2024Observational
- A qualitative study on redefining normality in relatives of patients with advanced cancer.Cancer medicine · 2024Article
- What patients with advanced cancer experience as helpful in navigating their life with a long-term response: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Development of Quality of Life in Adolescents and Young Adults With Cancer Using a Patient Support Smartphone App: Prepost Interventional Study.JMIR cancer · 2023Article
Corrections and comments
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Authors and funding
9 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Adolescents and young adults with an uncertain or poor cancer prognosis (UPCP) are confronted with ongoing and unique age-specific challenges, which forms an enormous burden. To date, little is known about the way AYAs living with a UPCP cope with their situation. Therefore, this study explores how AYAs with a UPCP cope with the daily challenges of their disease. Method: We conducted semi-structured in-depth interviews among AYAs with a UPCP. Patients of the three AYA subgroups were interviewed (traditional survivors, new survivors, low-grade glioma survivors), since we expected different coping strategies among these subgroups. Interviews were analyzed using elements of the Grounded Theory by Corbin and Strauss. AYA patients were actively involved as research partners. Results: In total 46 AYAs with UPCP participated, they were on average 33.4 years old (age range 23-44) and most of them were woman (63%). Most common tumor types were low-grade gliomas (16), sarcomas (7), breast cancers (6) and lung cancers (6). We identified seven coping strategies in order to reduce the suffering from the experienced challenges: (1) minimizing impact of cancer, (2) taking and seeking control, (3) coming to terms, (4) being positive, (5) seeking and receiving support, (6) carpe diem and (7) being consciously alive. Conclusion: This study found seven coping strategies around the concept of 'double awareness' and showcases that AYAs are able to actively cope with their disease but prefer to actively choose life over illness. The findings call for CALM therapy and informal AYA support meetings to support this group to cope well with their disease.
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