Evidence map›Paper›PMID 36588184›Full record

ArticlePrenatal diagnosis2023

Understanding the experiences and perspectives of prenatal screening among a diverse cohort.

Naomi O Riches, Erin P Johnson, Akila Subramaniam, Neeta L Vora, Emily Hardisty, Kate LaRiviere, Erin Rothwell

Abstract readMulticenter Study
In one paragraph

Article in Prenatal diagnosis, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Time for a New Norm: Experiences of 'Being Informed' and 'Having Choice' for Prenatal Screening for Chromosomal Conditions: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Naomi O RichesDepartment of Obstetrics and Gynecology, University of Utah School of Medicine, Salt Lake City, Utah, USA.ORCID 0000-0001-9815-6932
Erin P JohnsonDepartment of Obstetrics and Gynecology, University of Utah School of Medicine, Salt Lake City, Utah, USA.
Akila SubramaniamDepartment of Obstetrics and Gynecology, Center for Women's Reproductive Health, Division of Maternal and Fetal Medicine, University of Alabama, Birmingham, Alabama, USA.
Neeta L VoraDepartment of Obstetrics and Gynecology, University of North Carolina at Chapel Hill, Division of Maternal Fetal Medicine, University of North Carolina, Chapel Hill, North Carolina, USA.ORCID 0000-0002-2504-9455
Emily HardistyDepartment of Obstetrics and Gynecology, University of North Carolina at Chapel Hill, Division of Maternal Fetal Medicine, University of North Carolina, Chapel Hill, North Carolina, USA.
Kate LaRiviereUniversity of Utah School of Medicine, Salt Lake City, Utah, USA.
Erin RothwellDepartment of Obstetrics and Gynecology, University of Utah School of Medicine, Salt Lake City, Utah, USA.

Funding

Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening EducationR01HG011921 · NHGRI · UNIVERSITY OF UTAH · PI ROTHWELL, ERIN · 2021 to 2024
$2.9M
NHGRI NIH HHS R01 HG011921NHGRI NIH HHS R01HG011921
6 · The paper itself

Abstract

introductionRapid advances in prenatal genetic screening technology make it difficult for providers to deliver adequate prenatal counseling. The aim of this study was to understand how prenatal screening educational approaches can meet the needs of patients.

methodsQualitative content analysis was conducted on a diverse population who were interviewed to explore their perceived experiences and preferences for prenatal screening educational delivery.

resultsTwenty-two women from three US sites were interviewed. Participants were racially/ethnically diverse with 22.7% identifying as Black or African American (n = 5), 40.9% as Hispanic (n = 9), and 4.5% as Pacific Islander (n = 1). Four themes were identified: prenatal screening education, prenatal screening decision-making, return of results, and suggestions for creating a decision aid. Most results were consistent with previous research not targeting a diverse population. DISCUSSION/

conclusionOur results indicate that learning style preferences vary between patients and that current methods are not consistently satisfying patient's desire for understanding, particularly with 'high-risk' results, suggesting that a standardized tool could improve knowledge and decrease decisional conflict. This diverse cohort suggested a list and description of each of the testing options offered, information about each condition being screened for, a timeline for the testing and return of results, costs associated, and non-technical language.

Indexed as

Genetic TestingPrenatal DiagnosisBlack or African AmericanFemaleHispanic or LatinoHumansNative Hawaiian or Pacific IslanderPregnancy

Identifiers

PMID36588184
PMCPMC10175224

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.