Evidence map›Paper›PMID 36576180›Full record

ArticleBMJ open2022

Patient and physician perspectives on treatment burden in end-stage kidney disease: a nominal group technique study.

Sarah T Thomas, Adem Sav, Rae Thomas, Magnolia Cardona, Zoe Michaleff, Thomas T Titus, Claudia C Dobler

Abstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Sarah T ThomasDepartment of Medicine, Gold Coast Hospital and Health Service, Southport, Queensland, Australia sarah_t_thomas@outlook.com.ORCID 0000-0003-0717-2246
Adem SavFaculty of Health, Queensland University of Technology, Kelvin Grove, Queensland, Australia.ORCID 0000-0003-1381-2908
Rae ThomasBond University Faculty of Health Sciences and Medicine, Gold Coast, Queensland, Australia.ORCID 0000-0002-2165-5917
Magnolia CardonaInstitute for Evidence Based Healthcare, Bond University, Gold Coast, Queensland, Australia.ORCID 0000-0001-6499-2705
Zoe MichaleffEBP Professorial Unit, Gold Coast University Hospital, Southport, Queensland, Australia.
Thomas T TitusDepartment of Renal Medicine, Gold Coast Hospital and Health Service, Southport, Queensland, Australia.
Claudia C DoblerInstitute for Evidence Based Healthcare, Bond University, Gold Coast, Queensland, Australia.ORCID 0000-0002-5460-0189

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThe treatment workload associated with end-stage kidney disease (ESKD) is high. The treatment burdens experienced by patients with ESKD are not well understood. In this study, we aimed to elucidate the most important areas of treatment burden for discussion in a clinical encounter from the perspectives of patients with ESKD and nephrologists. We sought to explore possible solutions to these high priority treatment burden challenges.

designNominal group technique (NGT) sessions. SETTING AND

participantsThree in-person NGT sessions were conducted with 19 patients with dialysis-dependent ESKD from one tertiary treatment centre (mean age 64 years; range 47-82). All patients were either retired or on a disability pension; 74% perceived moderate or severe treatment burden; and 90% spent more than 11 hours on treatment-related activities per week (range 11-30). One online NGT session was conducted with six nephrologists from two Australian states.

main outcome measuresThe primary outcome was a ranked list of treatment burden priorities. The secondary outcome was potential solutions to these treatment burden challenges.

resultsEvery patient group ranked

conclusionsDiscussing treatment burden in a clinical encounter may lead to a better understanding of patients' capacity to cope with their treatment workload. This could facilitate tailored care, improve health outcomes, treatment sustainability and patients' overall quality of life.

Indexed as

Kidney Failure, ChronicPhysiciansAustraliaHumansMiddle AgedQuality of LifeRenal DialysisAdult nephrologyChronic renal failureDialysisEnd stage renal failureSOCIAL MEDICINE

Identifiers

PMID36576180
PMCPMC9723855

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.