ArticleHIV/AIDS (Auckland, N.Z.)2022
Experiences of Caring for Adolescents Living with HIV (ALHIV): A Qualitative Interview with Caregivers.
Article in HIV/AIDS (Auckland, N.Z.), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 13 citations in OpenAlex.
- Sociobehavioral determinants of nonretention among adolescents and young adults with HIV.AIDS (London, England) · 2025Trial
- Preliminary Impact of Group-Based Interventions on Stigma and the Mental Health of Caregivers of Adolescents Living with HIV in Uganda.AIDS and behavior · 2024Trial
- Feasibility and Acceptability of Group-Based Stigma Reduction Interventions for Adolescents Living with HIV and Their Caregivers: The Suubi4Stigma Randomized Clinical Trial (2020-2022).AIDS and behavior · 2024Trial
- Navigating Through the Caregiving Trajectory: A Qualitative Interview Study on the Challenges Encountered by Primary Caregivers When Caring for Adolescents Living with HIV.Nursing reports (Pavia, Italy) · 2026Article
- Correlates of Viral Suppression in Adolescents With HIV Taking Antiretroviral Therapy in Mozambique: Results of a Multicenter Cross-Sectional Survey.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2026Article
- The correlates and experiences of HIV-related intersectional stigma among caregivers of adolescents living with HIV during COVID-19 in KwaZulu-Natal, South Africa: Results from a mixed method study.PLOS global public health · 2026Article
- Navigating Adversity: Psychosocial Transformation, Service Advocacy, and End-of-Life Perceptions Among Family Caregivers of PLWHA During Inpatient Treatment in Hunan, China.Patient preference and adherence · 2026Article
- Generalized and COVID-19 related anxiety among Tanzanian adolescents with HIV and association with HIV outcomes during the COVID-19 pandemic.BMC public health · 2025Article
- Mental health interventions for adolescents living with HIV/AIDS in sub-Saharan Africa: protocol for a systematic review.BMJ open · 2024Article
- Social Categorisation and Social Identification: The Mediating Role of Social Isolation and Loneliness in Adolescents Living with HIV.International journal of behavioral medicine · 2024Article
- Experiences of support by unsuppressed adolescents living with HIV and their caregivers in Windhoek, Namibia: a qualitative study.Frontiers in public health · 2024Article
- 'I feel that I should decide on my own….': who should be involved in the decision-making process for adolescent involvement in HIV research?BMJ global health · 2023Article
- HIV Treatment and Care of Adolescents: Perspectives of Adolescents on Community-Based Models in Northern Uganda.HIV/AIDS (Auckland, N.Z.) · 2023Article
- Navigating antiretroviral adherence in boarding secondary schools in Nairobi, Kenya: A qualitative study of adolescents living with HIV, their caregivers and school nurses.PLOS global public health · 2023Article
- "Like Someone Is Paying Attention to You, Listening to You, and Guiding You": Acceptability of a Mental Health Chatbot Among Caregivers of Adolescents Living With HIV.Journal of the International Association of Providers of AIDS CareArticle
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Purpose: This study aims at exploring experiences of people caring for adolescents living with HIV, also known as caregivers. By 2021, 150,000 adolescents were living with HIV and 32,000 adolescents were dying of AIDS related causes. HIV/AIDS remains one of the most serious public health problems, especially among the adolescents. This has placed a heavy burden on many caregivers, yet they are essential in caring for ALHIV. However, focus of all interventions has excluded caregivers of ALHIV. Thus, this is the reason why this study is being conducted to find out caregivers' experience in caring for ALHIV. Participants and Methods: A phenomenological study was carried out. Purposive sampling was used to select a total of 15 caregivers to participate in the study. These participants were subjected to in-depth semi-structured interviews. Their responses were recorded, transcribed and translated for thematic analysis. Results: While analyzing the results, six themes emerged. They include: diagnosis and reaction to diagnosis, experiences on adolescent's HIV serostatus disclosure, stigma and discrimination, care disengagement, and lastly, challenges during care and coping strategies. Caregivers experienced feelings of fear, Guilt, suicidal thoughts after diagnosis. Stigma and discrimination of adolescents living with HIV which was common at school and from the neighbors and the adolescent stage were some of the challenges experienced by the caregivers and it makes it hard to retain ALHIV in care. Conclusion: Families are the main source of caregiving to the adolescents living with HIV (ALHIV). The study's findings indicate that caregivers in the families experience challenges related to family needs, and psychological challenges resulting from the adolescence stage. So, families should not be left to shoulder the burden of caring for ALHIV. As a way forward, social network and financial support should also be strengthened for most caregivers as a coping strategy.
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