ArticleThe International journal of eating disorders2023
Perceptions and experiences with eating disorder treatment in the first year of COVID-19: A longitudinal qualitative analysis.
Article in The International journal of eating disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 15 citations in OpenAlex.
- A Program-Led Motivational App (MI-Coach: ED) for Eating Disorder Waitlists: Findings From a Feasibility and Acceptability Pilot Trial.The International journal of eating disorders · 2026Article
- Parental food provisioning behaviours and perceptions in relation to environmentally sustainable diets for young children.Health promotion international · 2026Article
- Supporting Individuals on Eating Disorder Waitlists Through App-Based Motivational Interviewing: A Qualitative Evaluation of a Program-Led Pilot Intervention.The International journal of eating disorders · 2026Article
- Clinical Experiences Using Family Based Treatment for Eating Disorders.The International journal of eating disorders · 2025Article
- Mental Health After COVID-19 Death-Related Loss in Individuals With Eating Disorders: A Multi-Country Nested Matched Case-Control Study.The International journal of eating disorders · 2025Article
- Improving adult inpatient eating disorder treatment: perspectives of a sample of individuals in Canada with lived experience.Journal of eating disorders · 2024Article
- Review
- A Qualitative Exploration of Prominent Factors Contributing to the Aetiology of Child and Adolescent Eating Disorder Presentations during the COVID-19 Pandemic: The Perspectives of Patients, Parents and Clinicians.Journal of clinical medicine · 2024Article
- Perspectives on relapse prevention following intensive treatment of anorexia nervosa: A focus group study.The International journal of eating disorders · 2023Article
- Perceptions and experiences with eating disorder treatment in the first year of COVID-19: A longitudinal qualitative analysis.The International journal of eating disorders · 2023Article
Corrections and comments
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Authors and funding
13 authors at 2 institutions in 3 countries.
Funding
Abstract
objectiveThe COVID-19 pandemic created significant challenges in accessing and receiving treatment for individuals with eating disorders (EDs). The purpose of this study is to explore perceptions of and experiences with ED treatment during the first year of the pandemic among individuals with past and self-reported EDs in the United States.
methodsOnline surveys were administered to adults (N = 510) with a past or current self-reported ED at 13 timepoints between April 2020 and May 2021. Using longitudinal qualitative analysis, 5651 free-text responses were examined to capture experiences with ED treatment and generate inferences of change over time.
resultsWe categorized results into four sequential, temporal quarters and identified patterns that explained participants' perceptions of facilitators, barriers, and experiences with ED treatment over time: Quarter 1. Treatment Disruption and Reorienting Recovery; Quarter 2. Accumulating COVID-19 Stress and Virtual Treatment Woes; Quarter 3. A Continuation of Inadequate Care; and Quarter 4. Ongoing Adaptation and Adjustment to Uncertainty. Participant experiences were marked by numerous barriers to accessing care, challenges adjusting to virtual treatment, unmet treatment needs, and beginning acceptance of telehealth. DISCUSSION: Our findings present a timeline to help evaluate challenges related to navigating the switch to virtual care which created significant disruption to ED recovery. Participants spent much of the first year trying to adjust to unemployment, loss of insurance, and lack of access to in-person treatment. Future research should identify additional strategies to improve the receipt and experience of care for EDs. PUBLIC SIGNIFICANCE: Our findings suggest that individuals with eating disorders were significantly challenged by accumulating COVID-19 stress, worsening symptomatology, and limited access to effective treatment during the first year of the pandemic. This knowledge can guide clinicians, treatment centers, and policy makers in addressing the behavioral health needs of individuals impacted by disordered eating amidst emergent public health crises.
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