Evidence map›Paper›PMID 36573382›Full record

ArticleJournal of the American Geriatrics Society2023

Use of provider-sponsored patient portals among older adults and their family caregivers.

Julia G Burgdorf, Chanee D Fabius, Jennifer L Wolff

Abstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Review
  2. Friend Caregivers Among Older Adults.JAMA network open · 2026
    Article
  3. Patient Portal Use Among Older Adults: A Systematic Review and Meta-Analysis.Proceedings. IEEE International Conference on Healthcare Informatics · 2026
    Article
  4. Article
  5. More Older Adults Try Patient Portals in Recent Years, but Many Don't Continue: A Meta-Analysis.Extended abstracts on Human factors in computing systems. CHI Conference · 2026
    Article
  6. Article
  7. Article
  8. Review
  9. Care Partner Perspectives on the Use of a Patient Portal Intervention to Promote Care Partner Identification in Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  10. Article
  11. Article
  12. Patient Portal Use during Home Health Care at an Academic Health System.Journal of the American Medical Directors Association · 2024
    Article
  13. Article
  14. Article
  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Julia G BurgdorfCenter for Home Care Policy and Research at VNS Health, New York, New York, USA.ORCID 0000-0002-3356-1897
Chanee D FabiusDepartment of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Jennifer L WolffDepartment of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.

Funding

Caregiving for Alzheimer's Disease and Related Dementias: Enhancing the National Study of Caregiving (NSOC)R01AG054004 · NIA · JOHNS HOPKINS UNIVERSITY · PI FREEDMAN, VICKI A., WOLFF, JENNIFER L. · 2016 to 2020
$4.5M
Consumer Health Information Technology to Engage and Support ADRD Caregivers: Research Program to Address ADRD Implementation MIlestone 13.IR35AG072310 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2021 to 2025
$4.3M
NIA NIH HHS R01 AG054004NIA NIH HHS R35 AG072310
6 · The paper itself

Abstract

backgroundMillions of older adults co-manage or delegate health responsibilities to one or more family caregivers. Patient portals facilitate health care management tasks, but little is known about portal use arrangements (i.e., individual or joint use) among older adults and their caregivers.

methodsWe sought to characterize individual and joint use of the patient portal and to identify how using arrangements varies by individual-, interpersonal-, and community-level factors. We used linked 2017 National Health and Aging Trends Study, National Study on Caregiving, and American Community Survey data for a nationally representative sample of older adults (n = 1417; weighted n = 7.4 million) and their caregivers (n = 2232; weighted n = 20.6 million). Patient portals used by older adults and caregiver(s) were assessed via self-reports. We described portal use arrangements and tested for between-group differences using weighted Wald tests. Caregiver's likelihood of accessing the portal was modeled using weighted, multivariable logistic regression.

resultsOne in ten (10%) community-living older adults were sole portal users, 3% were joint users with one or more caregivers, 14% solely relied on one or more caregivers as portal users, and 74% reported no portal use. Older adults whose portal was only used by caregiver(s) were more likely to be Medicaid-enrolled (20% vs. 1%; p < 0.001), have dementia (43% vs. 5%; p < 0.001), and be homebound (65% vs. 27%; p < 0.001). Caregivers were more likely to use the portal if they were college-educated adjusted odds ratio (aOR): 1.68; p < 0.01) and reported caregiving-related emotional difficulty (aOR: 1.92; p < 0.001) and doing more than their "fair share" (aOR: 1.48; p = 0.03), and were less likely if Black (versus White) (aOR: 0.61; p = 0.01).

conclusionsPatient portals could be a valuable platform for identifying and supporting caregivers of high-need older adults, but existing disparities in portal access must be closed to ensure equitable support.

Indexed as

CaregiversFamilyPatient PortalsAgedAged, 80 and overFemaleHumansIndependent LivingLogistic ModelsMaleSelf ReportSurveys and QuestionnairesWhitecaregiversfamily caregiverspatient portalself-managementtelehealth

Identifiers

PMID36573382
PMCPMC10089953

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.