ArticleJournal of the American Geriatrics Society2023
"Been there, done that:" A grounded theory of future caregiver preparedness in former caregivers of parents living with dementia.
Article in Journal of the American Geriatrics Society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.
- Correlates of preparedness for caregiving of poststroke patients: a meta-analysis.Frontiers in neurology · 2025Pooled it
- Psychometric Validation of the Caregiver Preparedness Scale in a Population-Based Sample.Nursing reports (Pavia, Italy) · 2026Article
- [Low care burden and high self-efficacy are essential for preparing family carers to care for people with dementia-findings from the TeleCareHub project].Neuropsychiatrie : Klinik, Diagnostik, Therapie und Rehabilitation : Organ der Gesellschaft Osterreichischer Nervenarzte und Psychiater · 2026Article
- The Transition to Caregiver in Advanced Alzheimer's Disease: From Emotional Connection to Care Responsibility-A Grounded Theory Approach.Nursing reports (Pavia, Italy) · 2025Article
- Longitudinal changes in coping strategies across midlife and older adulthood: findings from the midlife in the United States study.Aging & mental health · 2025Observational
- Focusing on Caregiver Neglect: A Novel Strategy for Mistreatment of Older Adults Screening and Intervention.The Gerontologist · 2024Article
- Caregiving Challenges From Persistent Pain Among Family Caregivers to People With Dementia.The Gerontologist · 2024Article
- Care Partner Confidence and Experiences in Legal Planning for People Living With Dementia: A Mixed-Methods Study.The Gerontologist · 2024Article
- "WOOP is my safe haven": A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early-stage dementia.International journal of geriatric psychiatry · 2024Article
- "How can I be a caregiver for a second time?" A call to action to acknowledge and support experienced family caregivers.Journal of the American Geriatrics Society · 2024Article
- Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia.American journal of health promotion : AJHP · 2024Article
- Rewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework.The Gerontologist · 2024Article
Corrections and comments
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Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundFamily caregivers offer essential support to persons living with dementia (PLWD). Providing care for more than one family member or close other across adulthood is becoming increasingly common, yet little is known about the ways that caregiving experiences shape caregiver preparedness. The current study presents a grounded theory of future caregiver preparedness in former caregivers of PLWD.
methodA coding team (five coders and two auditors) used Consensual Qualitative Research and grounded theory techniques to analyze transcripts from 32 semi-structured interviews with midlife former caregivers of parents who died following advanced Alzheimer's disease and related dementias.
resultsQualitative analysis revealed two dimensions of future caregiver preparedness: caregiving confidence and caregiving insights. Narratives from caregiving experiences informed participants' descriptions of their future caregiver preparedness. Though some former caregivers described a positive (i.e., boosted or sustained) sense of caregiving confidence following care for their parents, others described a diminished (i.e., restricted or impeded) sense of confidence. Regardless of their confidence, all caregivers described specific caregiving insights related to one or more categories (i.e., caregiving self-conduct, care systems and resources, and relating with a care partner).
conclusionsPreparedness for future caregiving following recent care for a PLWD varies: For some, past experiences appear to offer cumulative advantages in anticipating future care roles, whereas for others, past experiences may contribute to apprehension towards, or rejection of, future care roles. Entering new caregiving roles with diminished confidence may have negative consequences for caregivers' and care partners' wellbeing. Multidimensional assessment of future caregiver preparedness in former caregivers of PLWD may support development of resources for former caregivers entering new caregiving roles.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.