Evidence map›Paper›PMID 36564116›Full record

ArticleBMJ open2022

Improving access to primary care and annual health checks for people who have a learning disability: a multistakeholder qualitative study.

Sarah Wigham, Jane Bourne, Karen McKenzie, Gill Rowlands, Katharine Petersen, Simon Hackett

Abstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Primary care experiences of adults reporting learning disability: a probability sample survey.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024
    Article
  10. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sarah WighamPopulation Health Sciences Institute, Newcastle University Faculty of Medical Sciences, Newcastle upon Tyne, UK.ORCID 0000-0002-7722-9108
Jane BourneCumbria Northumberland Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
Karen McKenzieNorthumbria University, Newcastle upon Tyne, UK.
Gill RowlandsPopulation Health Sciences Institute, Newcastle University Faculty of Medical Sciences, Newcastle upon Tyne, UK.
Katharine PetersenForum Family Practice, Cramlington, UK.
Simon HackettPopulation Health Sciences Institute, Newcastle University Faculty of Medical Sciences, Newcastle upon Tyne, UK simon.hackett@cntw.nhs.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo investigate key stakeholders' views on how to improve access to primary care in general practice settings for people with learning disabilities (or intellectual disabilities). Further to explore how inequalities and barriers in specific areas including annual health checks might be addressed.

designA qualitative study design was used with data collected during focus groups, interviews and open-response surveys; data analysis was thematic and informed by stakeholder consultation. Processes to facilitate quality included triangulation of stakeholder perspectives, triangulation of data collection methods and checking interpretation of findings with participants.

settingUK regional services including learning disability organisations, primary care general practitioner (GP) clinical practice networks and supported housing organisations.

participantsSixteen people participated in the study: four people with learning disabilities participated in a focus group; four relatives completed an interview or survey; eight GPs, practice nurses and supported housing managers participated in interviews.

resultsFive overarching themes describing approaches to improve primary care access for people with learning disabilities were identified including: prioritisation, proactivity, innovation and improvement, personalisation and prevention and follow-up. Definitions of themes were described and illustrated with quotes. Ten recommendations informed by the thematic analysis, stakeholder consultation, research and primary care guidance were codeveloped with people with learning disabilities.

conclusionsAll stakeholders identified problems, with primary care interfaces being misaligned with the needs of people with learning disabilities. The recommendations informed by all stakeholders can be used to guide development of service provision to better meet the needs of people with learning disabilities in primary care. Future research should explore professionals' understanding of reasonable adjustments.

Indexed as

Intellectual DisabilityLearning DisabilitiesAccess to Primary CareFocus GroupsHumansQualitative Researcheducation & training (see medical education & training)primary carequalitative researchquality in health care

Identifiers

PMID36564116
PMCPMC9791416

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.