Evidence map›Paper›PMID 36563046›Full record

ArticleJMIR formative research2022

Ethical Issues in the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men.

Antoine Khati, Jeffrey A Wickersham, Aviana O Rosen, Jeffrey Ralph B Luces, Nicholas Copenhaver, Alma Jeri-Wahrhaftig, Mohd Akbar Ab Halim, Iskandar Azwa, Kamal Gautam, Kai Hong Ooi and 1 more

Abstract read
In one paragraph

Article in JMIR formative research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Trial
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  5. "Frontiers in digital health · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Antoine KhatiDepartment of Allied Health Sciences, University of Connecticut, Storrs, CT, United States.ORCID https://orcid.org/0000-0001-9350-8230
Jeffrey A WickershamAIDS Program, Yale School of Medicine, New Haven, CT, United States.ORCID https://orcid.org/0000-0001-7701-9162
Aviana O RosenDepartment of Allied Health Sciences, University of Connecticut, Storrs, CT, United States.ORCID https://orcid.org/0000-0002-3533-5682
Jeffrey Ralph B LucesDepartment of Physical Therapy, University of the Philippines, Manila, Philippines.ORCID https://orcid.org/0000-0003-4938-3391
Nicholas CopenhaverDepartment of Allied Health Sciences, University of Connecticut, Storrs, CT, United States.ORCID https://orcid.org/0000-0002-7434-2279
Alma Jeri-WahrhaftigDepartment of Allied Health Sciences, University of Connecticut, Storrs, CT, United States.ORCID https://orcid.org/0000-0003-0181-6717
Mohd Akbar Ab HalimCentre of Excellence for Research in AIDS (CERiA), University of Malaya, Kuala Lumpur, Malaysia.ORCID https://orcid.org/0000-0002-7037-9808
Iskandar AzwaCentre of Excellence for Research in AIDS (CERiA), University of Malaya, Kuala Lumpur, Malaysia.ORCID https://orcid.org/0000-0003-1977-6709
Kamal GautamDepartment of Allied Health Sciences, University of Connecticut, Storrs, CT, United States.ORCID https://orcid.org/0000-0002-7121-7421
Kai Hong OoiCentre of Excellence for Research in AIDS (CERiA), University of Malaya, Kuala Lumpur, Malaysia.ORCID https://orcid.org/0000-0003-3803-7864
Roman ShresthaDepartment of Allied Health Sciences, University of Connecticut, Storrs, CT, United States.ORCID https://orcid.org/0000-0003-4340-3101

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
Strengthening the Master of Health Research Ethics Training ProgramR25TW010891 · FIC · UNIVERSITY OF MALAYA · PI Nik Sherina Hanafi, Adeeba Kamarulzaman · 2018 to 2026
$2.3M
Development and Testing of a Mobile Application to Enhance HIV Prevention Cascade in Malaysian MSMR33TW011665 · FIC · UNIVERSITY OF CONNECTICUT STORRS · PI SHRESTHA, ROMAN · 2022 to 2024
$885k
Training in MHealth Prevention with MSMK01DA051346 · NIDA · YALE UNIVERSITY · PI SHRESTHA, ROMAN · 2020 to 2024
$862k
Improving HIV testing and PrEP for transgender women through mHealthR21AI157857 · NIAID · YALE UNIVERSITY · PI SHRESTHA, ROMAN, WICKERSHAM, JEFFREY ALLEN · 2021 to 2022
$446k
Development and Testing of a Mobile Application to Enhance HIV Prevention Cascade in Malaysian MSMR21TW011665 · FIC · YALE UNIVERSITY · PI SHRESTHA, ROMAN · 2020 to 2021
$408k
FIC NIH HHS R21 TW011665FIC NIH HHS R25 TW010891FIC NIH HHS R33 TW011665NCATS NIH HHS UL1 TR001863NIAID NIH HHS R21 AI157857NIDA NIH HHS K01 DA051346
6 · The paper itself

Abstract

backgroundThe use of smartphone apps can improve the HIV prevention cascade for key populations such as men who have sex with men (MSM). In Malaysia, where stigma and discrimination toward MSM are high, mobile health app-based strategies have the potential to open new frontiers for HIV prevention. However, little guidance is available to inform researchers about the ethical concerns that are unique to the development and implementation of app-based HIV prevention programs.

objectiveThis study aimed to fill this gap by characterizing the attitudes and concerns of Malaysian MSM regarding HIV prevention mobile apps, particularly regarding the ethical aspects surrounding their use.

methodsWe conducted web-based focus group discussions with 23 MSM between August and September 2021. Using in-depth semistructured interviews, participants were asked about the risks and ethical issues they perceived to be associated with using mobile apps for HIV prevention. Each session was digitally recorded and transcribed. Transcripts were inductively coded using the Dedoose software (SocioCultural Research Consultants) and analyzed to identify and interpret emerging themes.

resultsAlthough participants were highly willing to use app-based strategies for HIV prevention, they raised several ethical concerns related to their use. Prominent concerns raised by participants included privacy and confidentiality concerns, including fear of third-party access to personal health information (eg, friends or family and government agencies), issues around personal health data storage and management, equity and equitable access, informed consent, and regulation.

conclusionsThe study's findings highlight the role of ethical concerns related to the use of app-based HIV prevention programs. Given the ever-growing nature of such technological platforms that are intermixed with a complex ethical-legal landscape, mobile health platforms must be safe and secure to minimize unintended harm, safeguard user privacy and confidentiality, and obtain public trust and uptake.

Indexed as

confidentialityethicsfocus groupHIVHIV preventionimplementationMalaysiamen who have sex with menmHealthmobile appmobile appsmobile healthmobile phoneprivacyuser privacy

Identifiers

PMID36563046
PMCPMC9823573

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.