SynthesisJournal of applied research in intellectual disabilities : JARID2023
Experiences of people with intellectual disability and dementia: A systematic review.
Synthesis in Journal of applied research in intellectual disabilities : JARID, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Love and People With Intellectual Disabilities: A Meta-Ethnography of Qualitative Research in the United Kingdom.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Views and Experiences of Dementia in People With Intellectual Disabilities: A Systematic Review of Qualitative Research.Journal of intellectual disability research : JIDR · 2025Pooled it
- Experiences of people with intellectual disability and dementia: A systematic review.Journal of applied research in intellectual disabilities : JARID · 2023Pooled it
- [Communication in later life under institutional conditions : Professional perspectives on communication of ageing people with profound intellectual and multiple disabilities].Zeitschrift fur Gerontologie und Geriatrie · 2026Article
- "How will we cope?" Couples With Intellectual Disability Where One Partner Has a Diagnosis of Dementia.The Gerontologist · 2024Article
- Exploring the lived experience: impact of dementia diagnosis on individuals with cognitive impairment - a qualitative study.BMC geriatrics · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundDementia disproportionately affects people with intellectual disability. Most qualitative studies explore their experiences by utilising proxy-reports. A smaller number of studies illustrate the possibility of exploring perspectives directly from people with intellectual disability and dementia.
methodThis systematic review synthesised findings from existing studies (n = 8) that involve people with intellectual disability and dementia as participants to understand their experiences of dementia. Searches were conducted using CINAHL, PsychInfo and Social Services Abstracts.
resultsFindings include descriptions of changes in individual functioning, a narrowing of social worlds and of how people made sense of the changes despite often having no knowledge of their dementia diagnosis. Additionally, discussion focuses on how people's experiences are shaped by their environments.
conclusionThe review recognises the complexities of speaking to people with intellectual disability about dementia, challenges views that people with intellectual and dementia cannot be involved in research and makes recommendations to support inclusion in future studies.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.