Evidence map›Paper›PMID 36561282›Full record

ArticleJournal of diabetes research2022

Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes.

Heike Saßmann, Su-Jong Kim-Dorner, Verena Berndt, Torben Biester, Andrea Dehn-Hindenberg, Bettina Heidtmann, Norbert Jorch, Eggert Lilienthal, Nicole Nellen-Hellmuth, Andreas Neu and 3 more

Abstract readMulticenter Study
In one paragraph

Article in Journal of diabetes research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Heike SaßmannHannover Medical School, Medical Psychology, Hannover, Germany.ORCID https://orcid.org/0000-0003-4557-8597
Su-Jong Kim-DornerHannover Medical School, Medical Psychology, Hannover, Germany.ORCID https://orcid.org/0000-0003-3927-7333
Verena BerndtSana Hospital Group Berlin-Brandenburg, Social-Pediatric Centre Lichtenberg, Berlin, Germany.
Torben BiesterChildren's Hospital AUF DER BULT, Diabetes-Centre for Children and Adolescents, Hannover, Germany.ORCID https://orcid.org/0000-0001-8051-5562
Andrea Dehn-HindenbergHannover Medical School, Medical Psychology, Hannover, Germany.ORCID https://orcid.org/0000-0001-9792-5293
Bettina HeidtmannCatholic Children's Hospital Wilhelmstift, Hamburg, Germany.ORCID https://orcid.org/0000-0001-6343-9000
Norbert JorchBielefeld University, University Clinic for Pediatrics, Evang. Klinikum Bethel, Bielefeld, Germany.
Eggert LilienthalUniversity Clinic Ruhr-University Bochum, University Children's Hospital, Bochum, Germany.
Nicole Nellen-HellmuthLeopoldina-Hospital Schweinfurt, Clinic for Pediatrics, Schweinfurt, Germany.ORCID https://orcid.org/0000-0002-6748-4076
Andreas NeuEberhard Karls University Tübingen, Pediatric Endocrinology and Diabetes, Tübingen, Germany.ORCID https://orcid.org/0000-0002-0055-2708
Katja SchaafElisabeth-Hospital-Essen, Pediatrics, Essen, Germany.ORCID https://orcid.org/0000-0001-9135-1401
Ralph ZieglerDiabetes Clinic for Children and Adolescents Münster, Münster, Germany.ORCID https://orcid.org/0000-0002-2373-3720
Karin LangeHannover Medical School, Medical Psychology, Hannover, Germany.ORCID https://orcid.org/0000-0002-3636-2025

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Aims: To investigate (1) daily, emotional, and physical caregiving burdens in parents of children with type 1 diabetes, (2) the sociodemographic and clinical predictors of three burdens, and (3) support measures that parents wish to receive. Methods: The study was a multicenter cross-sectional survey conducted in nine German pediatric diabetes centers. A questionnaire assessing three types of burdens and wishes for support was distributed to parents with a child with type 1 diabetes visiting one of the pediatric centers for a routine check-up. Results: Data from 1,107 parents (83% mothers) were analyzed. Parents reported significantly higher emotional burdens compared to daily and physical burdens ( Conclusion: Despite parents reporting high emotional burdens in connection with diabetes care, HbA1c and the gender of the reporting parent were the only risk factors. As the child gets older, parents' daily and physical distress decrease but not the emotional burden. Diabetes training including regularly offered booster sessions as well as low-threshold interventions for mental health issues and practical self-care skills is recommended to provide continuous support for parents.

Indexed as

Diabetes Mellitus, Type 1AdolescentChildCross-Sectional StudiesFemaleGlycated HemoglobinHumansMothersParentsGlycated Hemoglobin

Identifiers

PMID36561282
PMCPMC9767735

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.