SynthesisSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2022
Systematic review of caregiver burden, unmet needs and quality-of-life among informal caregivers of patients with pancreatic cancer.
Synthesis in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 61 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
61 citing papers in PubMed, 2 syntheses or guidelines pooled it, 71 citations in OpenAlex.
- Emotion Regulation Interventions for Cancer Patients and Their Relatives: A Systematic Review.Cancer medicine · 2026Pooled it
- The Burden of Informal Caregiving for Adults with Musculoskeletal Conditions: A Systematic Review.PharmacoEconomics · 2025Pooled it
- Exploring engagement with a web-based self-directed psychoeducational program for advanced cancer patients and their caregivers (iFOCUS): A sub study analysis of the DIAdIC trial.Palliative medicine · 2026Trial
- Effectiveness of a supportive care program via a smartphone application on the quality of life and care burden among family caregivers of patients with major depressive disorder: a randomized controlled trial.BMC public health · 2024Trial
- Poor mental health days and depressive disorders comparing non-caregivers, informal non-cancer caregivers, and informal caregivers of cancer patients: BRFSS 2022-23.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Experiences of health care in family members of persons with incurable oesophageal or gastric cancer - a hermeneutical phenomenological study.BMC palliative care · 2026Article
- Characterizing and prioritizing unmet medical needs: Findings from a patient and family caregiver workshop.Journal of managed care & specialty pharmacy · 2026Article
- Access to Supportive Care Among Australian Cancer Carers: Experiences of Priority Populations.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Needs of Rural Caregivers of Patients With Cancer: A Scoping Review of Evidence From North America, Europe, and Australia.Psycho-oncology · 2026Article
- Association Between Health-Related Quality of Life In Patients with Colorectal Cancer and Their Informal Caregivers.Advances in therapy · 2026Article
- Association of Physical Activity with Psychological Distress and Poor Mental Health Days Among Informal Caregivers of Older Adults: Findings from the 2023 BRFSS Caregiver Module.Healthcare (Basel, Switzerland) · 2026Article
- Anticipatory Grief Among Family Caregivers of Cancer Patients in Home Palliative Care: A Constructivist Grounded Theory.Healthcare (Basel, Switzerland) · 2026Article
- Relationship Values and Committed Actions Among Couples Coping with Prostate Cancer: A Qualitative Study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Quality of life dynamics in the gastric cancer dyad: an actor-partner interdependence model analysis guiding the development of a family-centered nursing framework.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Supportive care needs and quality of life in caregivers of cancer patients receiving home-based palliative care: a serial mediation model.BMC palliative care · 2026Article
- Insights From Wise Warriors: A Needs Assessment and Preventive Parenting Program Recommendations From Parents of Children With Spinal Muscular Atrophy.Journal of child neurology · 2026Article
- Poor mental health days and depressive disorders by informal cancer patient caregiver status: BRFSS 2022-23.Research square · 2026Article
- Pancreatic cancer.Nature reviews. Disease primers · 2026Review
- Between Ideal and Actual Care: Patients' and Family Carers' Experiences of Cancer Care Relationships.European journal of investigation in health, psychology and education · 2026Article
- Psychometric validation of the Danish cancer caregiver roles and responsibilities scale.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
1 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeInformal caregivers play an important supportive care role for patients with cancer. This may be especially true for pancreatic cancer which is often diagnosed late, has a poor prognosis and is associated with a significant symptom burden. We systematically reviewed the evidence on caregiver burden, unmet needs and quality-of-life of informal caregivers to patients with pancreatic cancer.
methodPubMed, Medline, CINAHL and Embase databases were systematically searched on 31 August 2021. Qualitative and quantitative data on informal caregivers' experiences were extracted and coded into themes of burden, unmet needs or quality-of-life with narrative synthesis of the data undertaken.
resultsNine studies (five qualitative, four quantitative), including 6023 informal caregivers, were included in the review. We categorised data into three key themes: caregiver burden, unmet needs and quality-of-life. Data on caregiver burden was organised into a single subtheme relating to symptom management as a source of burden. Data on unmet needs was organised into three subthemes need for: better clinical communication; support and briefings for caregivers; and help with navigating the health care system. Data on quality-of-life indicate large proportions of informal caregivers experience clinical levels of anxiety (33%) or depression (12%-32%). All five qualitative studies were graded as good quality; three quantitative studies were poor quality, and one was fair quality.
conclusionHigh-quality pancreatic cancer care should consider the impacts of informal caregiving. Prospective longitudinal studies examining multiple dimensions of caregiver burden, needs, and quality-of-life would be valuable at informing supportive care cancer delivery to pancreatic cancer informal caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.