ArticleJournal of epidemiology and community health2023
Variability in perceived burden and health trajectories among older caregivers: a population-based study in Sweden.
Article in Journal of epidemiology and community health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Exploring the experiences and needs in everyday life of spouse carers of persons with dementia.International journal of qualitative studies on health and well-being · 2026Article
- The intensity of informal caregiving and its implications for older caregivers: a national survey in Sweden.Scandinavian journal of public health · 2026Article
- Economic situation of informal caregivers for older adults in the context of changing long-term care policies: a mixed methods study.BMC public health · 2026Article
- Associations between age, gender and health deterioration in caregivers aged 75 and older in Spain: an observational study.BMJ open · 2026Observational
- Quality of life among older informal caregivers in Sweden: the role of loneliness and social isolation.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Living well with dementia: a qualitative interview study on family caregivers' call for more person- and family-centered dementia support.BMC geriatrics · 2025Article
- Perceived Importance of Types and Characteristics of Support to Informal Caregivers among Spouse Caregivers of Persons with Dementia in Sweden: A Cross-Sectional Questionnaire-Based Study.International journal of environmental research and public health · 2024Article
- Caregivers' burden of care during emergency department care transitions among older adults: a mixed methods cohort study.BMC geriatrics · 2024Observational
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5 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundThe negative effects of informal caregiving are determined by the characteristics of the caregiver-care receiver dyad and the context of care. In this study, we aimed to identify which subgroups of older informal caregivers (1) experience the greatest subjective burden and (2) incur a faster decline in objective health status.
methodsFrom a total of 3363 older participants in the Swedish National study on Aging and Care in Kungsholmen (SNAC-K), we identified 629 informal caregivers (19.2%, mean age 69.9 years). Limitations to life and perceived burden were self-reported, and objective health status was quantified using the comprehensive clinical and functional Health Assessment Tool (HAT) score (range: 0-10). Ordered logistic regressions and linear mixed models were used to estimate the associations between caregiving-related exposures and subjective outcomes (cross-sectionally) and objective health trajectories (over 12 years), respectively.
resultsHaving a dual role (providing and receiving care simultaneously), caring for a spouse, living in the same household as the care receiver and spending more hours on caregiving were associated with more limitations and burden. In addition, having a dual role (β=-0.12, 95% CI -0.23 to -0.02) and caring for a spouse (β=-0.08, 95% CI -0.14 to -0.02) were associated with a faster HAT score decline. Being female and having a poor social network were associated with an exacerbation of the health decline.
conclusionsBoth the heterogeneity among caregivers and the related contextual factors should be accounted for by policymakers as well as in future research investigating the health impact of informal caregiving.
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