Evidence map›Paper›PMID 36537275›Full record

ArticleThe Hastings Center report2022

Deciding with Others: Interdependent Decision-Making.

Emily A Largent, Justin Clapp, Jennifer S Blumenthal-Barby, Christine Grady, Amy L McGuire, Jason Karlawish, Joshua D Grill, Shana D Stites, Andrew Peterson

Abstract read
In one paragraph

Article in The Hastings Center report, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Mind Care: The Moral Significance of the Dementia Caregiving Dyad.The American journal of bioethics : AJOB · 2026
    Article
  3. Stakeholder perspectives on the role of caregivers in cancer clinical trial decision-making: results of a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Emily A Largent
Justin Clapp
Jennifer S Blumenthal-Barby
Christine Grady
Amy L McGuire
Jason Karlawish
Joshua D Grill
Shana D Stites
Andrew Peterson

Funding

UPenn ADCC Biomarker CoreP30AG010124 · NIA · UNIVERSITY OF PENNSYLVANIA · PI XIE, SHARON XIANGWEN · 1991 to 2020
$35.1M
The Alzheimer's Disease Research Center at the University of California, IrvineP30AG066519 · NIA · UNIVERSITY OF CALIFORNIA-IRVINE · PI Crystal M. Glover · 2020 to 2026
$27.9M
Research Education ComponentP30AG072979 · NIA · UNIVERSITY OF PENNSYLVANIA · PI DAVID A WOLK · 2021 to 2026
$24.8M
Adapting supported decision making to promote wellbeing and improve health outcomes for persons living with Alzheimer's disease and Alzheimer's disease related dementiasR01AG077111 · NIA · UNIVERSITY OF PENNSYLVANIA · PI Emily Largent · 2022 to 2026
$3.1M
Study of Cognitive Symptoms and Future Time Perspective in Preclinical Alzheimer's DiseaseK23AG065442 · NIA · UNIVERSITY OF PENNSYLVANIA · PI STITES, SHANA D. · 2020 to 2024
$886k
UNDERSTANDING HOW THE STUDY PARTNER REQUIREMENT IMPACTS THE DISCOVERY AND TRANSLATION OF PRECLINICAL ALZHEIMERS DISEASEK01AG064123 · NIA · UNIVERSITY OF PENNSYLVANIA · PI LARGENT, EMILY · 2019 to 2023
$637k
Caregivers' Experiences with and Perspectives on Communication with Persons with DementiaR21AG069805 · NIA · UNIVERSITY OF PENNSYLVANIA · PI KARLAWISH, JASON H, PETERSON, ANDREW H · 2020 to 2021
$452k
NIA NIH HHS 3K23AG065442-03S1NIA NIH HHS K01 AG064123NIA NIH HHS K01-AG064123NIA NIH HHS K23 AG065442NIA NIH HHS K23AG065442NIA NIH HHS P30 AG010124NIA NIH HHS P30-AG-010124NIA NIH HHS P30 AG066519NIA NIH HHS P30 AG072979NIA NIH HHS R01 AG077111NIA NIH HHS R01-AG077111NIA NIH HHS R21 AG069805NIA NIH HHS R21AG069805
6 · The paper itself

Abstract

Over the course of human life, health care decision-making is often interdependent. In this article, we use "interdependence" to refer to patients' engagement of nonclinicians-for example, family members or trusted friends-to reach health care decisions. Interdependence, we suggest, is common for patients in all stages of life, from early childhood to late adulthood. This view contrasts with the common bioethical assumption that medical decisions are either wholly independent or dependent and that independence or dependence is tightly coupled with a person's decision-making capacity. In this article, we array various approaches to decision-making along a continuum of interdependence. An appreciation of this continuum can empower patients and elucidate ethical challenges that arise when people transition between different kinds of interdependence across the life span.

Indexed as

Decision MakingFamilyAdultChild, PreschoolHumansInformed ConsentPatient Participationassentcapacityclinical ethicscommunicationinformed consentsurrogate decision-making

Identifiers

PMID36537275
PMCPMC9773484

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.