ArticleJournal of child and family studies2022
"I have a Ph.D. in my daughter": Mother and Child Experiences of Living with Childhood Chronic Illness.
Article in Journal of child and family studies, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
19 citing papers in PubMed, 28 citations in OpenAlex.
- Parental experience and information needs following a positive newborn screening test-based neonatal diagnosis of a chronic condition: an integrative review.International journal of nursing studies advances · 2026Review
- Article
- Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders.Journal of autism and developmental disorders · 2026Article
- Adolescents' Experiences of Being a Sibling of a Child With Type 1 Diabetes: A Qualitative Study.The science of diabetes self-management and care · 2026Article
- "Rolling the Boulder Up the Hill": A Qualitative Study of Parents' Experiences Providing Ongoing Care at Home for Their Child with Complex Medical Needs.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026Article
- Coping Strategies and Sense of Care Among Parents of Children Affected by Sturge-Weber Syndrome: A Cross-Sectional Study.Nursing reports (Pavia, Italy) · 2026Article
- Bereaved Parents' Narratives of Their Child Who Died of Cancer: A Qualitative Study.Pediatrics · 2026Article
- Caregiver burden in children with medical complexity: an approach based on the identification of associated factors.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2026Article
- Family resilience and health-related quality of life in children with malignant bone tumors: implications for pediatric oncology nursing.Frontiers in psychology · 2026Article
- Keeping Up With School During Hospitalization for Children With Chronic Illnesses, Siblings and Parents.Child: care, health and development · 2025Article
- The roles of self-compassion and social support on the maternal adjustment to a child's hip dysplasia.Journal of health psychology · 2025Article
- Parents as First Responders: Experiences of Emergency Care in Children with Nemaline Myopathy: A Qualitative Study.Nursing reports (Pavia, Italy) · 2025Article
- Referrals to Peer Support for Families in Pediatric Subspecialty Practices: A Qualitative Study.Maternal and child health journal · 2025Article
- "It's Like You're Feeding Your Child Twice": Barriers and Facilitators to Human Milk Feeding Children With Cystic Fibrosis.Pediatric pulmonology · 2025Article
- A closer look into maternal psychological distress and the associated factors: the case of autism and chronic conditions.Frontiers in psychiatry · 2025Article
- When care hurts: parents' experiences of caring for a child with epidermolysis bullosa.Orphanet journal of rare diseases · 2024Article
- Conceptualizing burnout from the perspective of parents of children with complex care needs.PEC innovation · 2024Article
- Assessment of Gluten-Free Products' Availability and Satisfaction in a Polish Population of Coeliac Disease Patients and Their Caregivers.Nutrients · 2024Article
- Families' situation of caring for a child with a chronic condition: a mixed methods study.Revista da Escola de Enfermagem da U S P · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Children in the United States are increasingly living with chronic illnesses. Existing literature has focused on adolescent children's experiences. The current study involved interviews with 10 families: children (ages 6-11) diagnosed with chronic illnesses and their mothers to better understand the experience of living with chronic illness. Using grounded theory, participants' responses fell into several themes: impact on family dynamics, parental advocacy, initial difficulty followed by resilience, unique stressors, and areas of social support. Overall, both mothers and children reported unique challenges related to living with childhood chronic illness, especially in terms of family dynamics, sibling relationships, and the mother-child relationship. However, almost all families also emphasized their ability to be resilient. The results have implications for medical practitioners and teachers who work with school-age children with chronic illnesses. Mothers need to feel supported and understood by professionals. Families need support to cope with stressors and strengthen couple, sibling, and parent-child relationships.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.