ArticleActa paediatrica (Oslo, Norway : 1992)2023
Regional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood.
Article in Acta paediatrica (Oslo, Norway : 1992), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed, 6 citations in OpenAlex.
- Immunological biomarkers at birth and later risk of celiac disease.BMC gastroenterology · 2025Article
- Impact of ESPGHAN no-biopsy strategy on the outcome of celiac disease treatment in children.Frontiers in pediatrics · 2025Article
- Regional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood.Acta paediatrica (Oslo, Norway : 1992) · 2023Article
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Authors and funding
6 authors at 4 institutions in 3 countries.
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Abstract
aimTo examine the clinical follow up of paediatric coeliac disease and the rate of loss of follow up during childhood, for which data are scarce.
methodsIn a cohort of coeliac children diagnosed in 2013-2018 in Gothenburg, Sweden, we retrospectively explored the follow-up practice of paediatric coeliac disease until June 2021. We used medical records from hospital-based paediatric gastroenterology and general paediatric outpatient clinics, laboratory records, and questionnaires. Loss of follow up was defined no coeliac disease-related follow up or tissue transglutaminase test over the past 2 years of study enrolment.
resultsWe included 162 children (58% girls) aged 7.8-18.2 years (average 12.7). Most participants (76%) were followed at general paediatric outpatient clinics rather than hospital-based clinics. After 2.3-8.8 (average 5.3) years since diagnosis, 23 patients (14%; 95% confidence interval, 9%-21%) had been lost to follow up. Patients with loss of follow up were more often boys (61% versus 39%, p = 0.08), with a somewhat longer average disease duration of 5.8 versus 5.2 years (p = 0.11). There were no between-group differences in socio-economic characteristics and patient-reported experience measures of coeliac disease care.
conclusionOne in seven coeliac patients may experience loss of follow up during childhood.
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