Evidence map›Paper›PMID 36522772›Full record

ArticleJournal of eating disorders2022

"I'm not alone": a qualitative report of experiences among parents of children with eating disorders attending virtual parent-led peer support groups.

Laura Grennan, Maria Nicula, Danielle Pellegrini, Kelly Giuliani, Erica Crews, Cheryl Webb, Maria-Rosa Gouveia, Techiya Loewen, Jennifer Couturier

Registry-linked trialAbstract read
In one paragraph

Article in Journal of eating disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04686864 (A Virtual Parent-led Support Group for Parents of Children and Youth With Eating Disorders), which is not on this map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04686864 early_phase1completednot on this map

A Virtual Parent-led Support Group for Parents of Children and Youth With Eating Disorders: A Mixed Methods Feasibility Study Examining Acceptability, Cost and Parent Outcomes

TypeinterventionalSponsorMcMaster UniversityRan2021 to 2022Enrolled36ConditionsEating DisordersArmsSupport Group for Caregivers
3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. A National Virtual Peer Support Group for Women Veterans Living with Breast Cancer: Lessons from the Field.International journal of environmental research and public health · 2026
    Article
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  5. Article
  6. Article
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  8. Review
  9. Article
  10. Observational
  11. The Shadow Pandemic: Eating Disorders, Youth, and COVID-19.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Laura GrennanMcMaster University, 1280 Main St W, Hamilton, ON, L8S 4L8, Canada.
Maria NiculaMcMaster University, 1280 Main St W, Hamilton, ON, L8S 4L8, Canada.
Danielle PellegriniMcMaster University, 1280 Main St W, Hamilton, ON, L8S 4L8, Canada.
Kelly GiulianiReach Out Centre for Kids, 471 Pearl St, Burlington, ON, L7R 4M4, Canada.
Erica CrewsReach Out Centre for Kids, 471 Pearl St, Burlington, ON, L7R 4M4, Canada.
Cheryl WebbMcMaster University, 1280 Main St W, Hamilton, ON, L8S 4L8, Canada.
Maria-Rosa GouveiaReach Out Centre for Kids, 471 Pearl St, Burlington, ON, L7R 4M4, Canada.
Techiya LoewenPhoenix Wings Eating Disorder Recovery Initiative, 872 Devonshire Ave, Woodstock, ON, N4S 5R8, Canada.
Jennifer CouturierMcMaster University, 1280 Main St W, Hamilton, ON, L8S 4L8, Canada. coutur@mcmaster.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe treatment for children with eating disorders (EDs) requires extensive involvement of parents. The parents of children with EDs have voiced a need for greater support, including connecting with other parents with lived experience of caring for a child with an ED. We aimed to qualitatively explore parental experiences of these groups, including their benefits and areas for improvement.

methodsThis study examined the delivery of four virtual parent-led peer support groups in Ontario, Canada for parents of children with EDs with approximately 10 parent participants per group and two parent facilitators leading each group. Parents (n = 44) were asked to attend 12 bi-weekly support group sessions over 6 months, and then complete an individual end-of-study qualitative interview. Interview data were analyzed using content analysis, following the qualitative description design.

resultsThirty-six parents completed the end-of-study qualitative interview. Participants shared their experiences and impressions related to the group's structure and content. Notable helpful aspects of the group included being able to receive support from those with similar experiences, access to education and resources about EDs, and being able to support others. Suggestions for improvements were made, which included organizing groups according to the child's ED diagnosis or duration of illness.

conclusionThe findings indicate that this intervention is acceptable to parents and is perceived as helpful. Future research is needed to strengthen this support group model and to study its effects for parents in different settings and for parents of children with various EDs.

trial registrationClinicalTrials.gov NCT04686864.

Indexed as

AdolescentsCaregiversChildrenEating disordersParentsPeer supportVirtual

Identifiers

PMID36522772
PMCPMC9754305

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.