Evidence map›Paper›PMID 36517104›Full record

ArticleBMJ open2022

Supporting patient and public partners in writing lay summaries of scientific evidence in healthcare: a scoping review protocol.

Sareh Zarshenas, JoAnne Mosel, Adora Chui, Samantha Seaton, Hardeep Singh, Sandra Moroz, Tayaba Khan, Heather Colquhoun

Abstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Sareh ZarshenasOccupational Science and Occupational Therapy Department, University of Toronto, Toronto, Ontario, Canada.ORCID 0000-0002-2872-3257
JoAnne MoselStrategy for Patient-Oriented Research-Evidence Alliance, Toronto, Ontario, Canada.
Adora ChuiInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Samantha SeatonOccupational Science and Occupational Therapy Department, University of Toronto, Toronto, Ontario, Canada.
Hardeep SinghOccupational Science and Occupational Therapy Department, University of Toronto, Toronto, Ontario, Canada.
Sandra MorozStrategy for Patient-Oriented Research-Evidence Alliance, Toronto, Ontario, Canada.
Tayaba KhanStrategy for Patient-Oriented Research-Evidence Alliance, Toronto, Ontario, Canada.
Heather ColquhounOccupational Science and Occupational Therapy Department, University of Toronto, Toronto, Ontario, Canada heather.colquhoun@utoronto.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionDespite growing interest among patient and public partners to engage in writing lay summaries, evidence is scarce regarding the availability of resources to support them. This protocol describes the process of conducting a scoping review to: (1) summarise the source, criteria and characteristics, content, format, intended target audience, patient and public involvement in preparing guidance and development processes in the available guidance for writing lay summaries; (2) contextualise the available guidance to the needs/preferences of patient and public partners and (3) create a patient and public partner-informed output to support their engagement in writing lay summaries. METHOD AND ANALYSIS: A scoping review with an integrated knowledge translation approach will be used to ensure the collaboration between patient/public partners and researchers in all steps of the review. To meet objective 1, the English language evidence within a healthcare context that provides guidance for writing lay summaries will be searched in peer-reviewed publications and grey literature. All screening and extraction steps will be performed independently by two reviewers. Extracted data will be organised by adapting the European Union's principles for summaries of clinical trials for laypersons. For objectives 2 and 3, a consultation exercise will be held with patient and public partners to review and contextualise the findings from objective 1. A directed content analysis will be used to organise the data to the needs of the public audience. Output development will follow based on the results. ETHICS AND DISSEMINATION: Ethics approval will be obtained for the consultation exercise. Our target audience will be stakeholders who engage or are interested in writing lay summaries. Our dissemination products will include a manuscript, a lay summary and an output to support patient and public partners with writing lay summaries. Findings will be published in a peer-reviewed journal and presented at relevant conferences. OPEN SCIENCE FRAMEWORK REGISTRATION: osf.io/2dvfg.

Indexed as

Delivery of Health CareWritingHumansPatientsPeer ReviewResearch DesignResearch PersonnelScoping Reviews as TopicHealth policyProtocols & guidelinesPUBLIC HEALTH

Identifiers

PMID36517104
PMCPMC9756171

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.