ArticleHealth expectations : an international journal of public participation in health care and health policy2023
'I don't know what to do or where to go'. Experiences of accessing healthcare support from the perspectives of people living with Long Covid and healthcare professionals: A qualitative study in Bradford, UK.
Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 51 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
51 citing papers in PubMed, 102 citations in OpenAlex.
- Personalisation at the Core of Success: Process Evaluation of the LISTEN Randomised Controlled Trial Evaluating a Personalised Self-Management Support Intervention for People Living With Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- Young People Navigating the Looping Effects of Long Covid: Exhausting Agency and the 'Ongoing After' of Pandemic.Sociology of health & illness · 2026Article
- Socio-Demographic Inequalities in COVID-19 Health Care Access and Experiences in the United Kingdom: Intersectional and Mixed-Methods Analyses of Open and Closed Questions in a Prospective Cohort Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- "That's not my silo": Navigating fragmented long COVID care in the mid-Atlantic United States.SSM. Qualitative research in health · 2026Article
- Contested illness and communication: Positioning long Covid in online discussion forums.Journal of health psychology · 2026Article
- Ethnic differences in Long COVID diagnosed in primary care in England (2020-2022): an observational cohort study using OpenSAFELY.The Lancet regional health. Europe · 2026Article
- Vital yet Fragile: Informal Networks of Support Among Young People Navigating Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Co-Creating Publicly Available Resources to Increase Awareness of and Support for Long Covid Among Ethnic Minority Communities.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- 'What Do People With Long Covid Want From Healthcare Services?' A Qualitative Exploration From Lived Experience.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Prevalence and Factors Associated With Acute Stress Disorder Among Adults Ever Infected With COVID-19 During the Ending Phase of the Pandemic in 7 Chinese Cities: Cross-Sectional Study.JMIR public health and surveillance · 2026Article
- How do people with post-COVID syndrome in Germany experience healthcare and information provision? A qualitative interview study.BMJ open · 2026Article
- Exploring the Intensity and Continuity of Hospital Care for Patients With Long Covid: Evidence From an English Urban Healthcare System.Health expectations : an international journal of public participation in health care and health policy · 2026Observational
- COVID-19-associated neurological and psychological manifestations.Nature reviews. Disease primers · 2025Review
- Barriers, facilitators, and the role of central coordination: understanding long COVID-19 healthcare access in a universal healthcare system.Archives of public health = Archives belges de sante publique · 2025Article
- Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child's perspective.BMC pediatrics · 2025Article
- Challenges of Inclusion: A Population-Based Interview Study of Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Addressing Inequalities in Long Covid Healthcare: A Mixed-Methods Study on Building Inclusive Services.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- Health and social service provider perspectives on challenges, approaches, and recommendations for treating long COVID: a qualitative study of Canadian provider experiences.BMC health services research · 2025Article
- Self-reported Health Service Utilization and Barriers to Care Among US Adults with a History of Post COVID-19 Condition.Journal of general internal medicine · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundIn October 2022, it was estimated 2.3 million people in the United Kingdom have self-reported Long Covid (LC). Many people have reported not receiving adequate healthcare support. There is a lack of research which provides an in-depth exploration of the barriers faced by people with LC in accessing healthcare support. It is important to understand these barriers to provide better support, care and advice for those experiencing LC.
objectiveTo understand the barriers faced in accessing primary, secondary and specialist healthcare support for people with LC. DESIGN AND PARTICIPATION: 40 interviews were conducted with people living with LC in Bradford alongside 12 interviews with healthcare professionals (HCPs) providing LC support in Bradford healthcare settings. Interviews were analysed using reflexive thematic analysis.
resultsPeople living with LC had a large degree of difficulty in accessing healthcare services for LC support. We categorized the healthcare access experiences of participants into five main types: (1) being unable to access primary care, (2) accessing primary care but receiving (perceived) inadequate support, (3) extreme persistence, (4) alternatives to mainstream health care and (5) positive experiences. There was a severe lack of access to specialist LC services. Ethnic minority participants faced a further barrier of mistrust and fear of services deterring them from accessing support. HCPs discussed systemic barriers to delivering services. Experiences were embedded in macrostructural issues further exacerbated by the pandemic.
conclusionTo better support people with LC, the barriers faced in accessing healthcare support must be addressed. Of significance, improvements to general practitioner access are required; especially as GPs are the first line of support for people living with LC. PATIENT AND PUBLIC INVOLVEMENT: A patient and public involvement group is engaged at regular intervals in the project.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.