Evidence map›Paper›PMID 36507117›Full record

ArticleSSM. Qualitative research in health2023

Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy.

Alice Maclean, Kate Hunt, Ashley Brown, Jane A Evered, Anna Dowrick, Andrea Fokkens, Rachel Grob, Susan Law, Louise Locock, Michelle Marcinow and 4 more

Abstract read
In one paragraph

Article in SSM. Qualitative research in health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Vital yet Fragile: Informal Networks of Support Among Young People Navigating Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Rethinking 'Recovery': A Comparative Qualitative Analysis of Experiences of Intensive Care With COVID and Long Covid in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  9. Article
  10. Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Alice MacleanInstitute for Social Marketing and Health, University of Stirling, Scotland, FK9 4AL, UK.
Kate HuntInstitute for Social Marketing and Health, University of Stirling, Scotland, FK9 4AL, UK.
Ashley BrownInstitute for Social Marketing and Health, University of Stirling, Scotland, FK9 4AL, UK.
Jane A EveredUniversity of Wisconsin, Madison, Madison, WI, USA.
Anna DowrickHealth Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford, OX2 6GG, UK.
Andrea FokkensUniversity of Groningen, University Medical Center Groningen, Department of Health Sciences, Applied Health Research, the Netherlands.
Rachel GrobDepartment of Family Medicine and Community Health, University of Wisconsin, Madison, WI, USA.
Susan LawInstitute of Health Policy, Management & Evaluation, University of Toronto, M5T 3M6, Canada.
Louise LocockUniversity of Aberdeen, Foresterhill, Aberdeen, AB25 2ZD, UK.
Michelle MarcinowInstitute for Better Health, Trillium Health Partners, L5B 1B8, Canada.
Lorraine SmithSydney Pharmacy School, Faculty of Medicine and Health, University of Sydney, Australia.
Anna UrbanowiczSocial and Global Studies Centre, School of Global, Urban and Social Studies, RMIT University, School of Health and Social Development, Faculty of Health, Deakin University, Australia.
Nientke VerheijUniversity of Groningen, University Medical Center Groningen, Department of Health Sciences, Applied Health Research, the Netherlands.
Cervantee WildUniversity of Wisconsin, Madison, Madison, WI, USA.

Funding

University of Wisconsin Institute for Clinical and Translational ResearchUL1TR002373 · NCATS · UNIVERSITY OF WISCONSIN-MADISON · PI ELIZABETH S BURNSIDE, Allan R. Brasier · 2017 to 2026
$75.9M
Chief Scientist Office COV/LTE/20/04NCATS NIH HHS UL1 TR002373
6 · The paper itself

Abstract

This analysis of people's accounts of establishing their need and experiences of healthcare for long Covid (LC) symptoms draws on interview data from five countries (UK, US, Netherlands, Canada, Australia) during the first ∼18 months of the Covid-19 pandemic when LC was an emerging, sometimes contested, condition with scant scientific or lay knowledge to guide patients and professionals in their sense-making of often bewildering constellations of symptoms. We extend the construct of candidacy to explore positive and (more often) negative experiences that patients reported in their quest to understand their symptoms and seek appropriate care. Candidacy usually considers how individuals negotiate healthcare access. We argue a crucial step preceding

Indexed as

CandidacyCovid-19Cross-national comparisonHelp-seekingLong CovidPatient experience

Identifiers

PMID36507117
PMCPMC9721377

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.