Evidence map›Paper›PMID 36506875›Full record

ArticleThe journal of nursing home research sciences2021

Physicians' perceived barriers and proposed solutions for high-quality palliative care in dementia in the Netherlands: Qualitative analysis of survey data.

Laura Bavelaar, Hilde T A van der Steen, Hilde de Jong, Gillian Carter, Kevin Brazil, Wilco P Achterberg, Jenny T van der Steen

Abstract read
In one paragraph

Article in The journal of nursing home research sciences, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. A Situation-Specific Theory of End-of-Life Communication in Nursing Homes.International journal of environmental research and public health · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Laura BavelaarDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.
Hilde T A van der SteenDepartment of Radiology, Leiden University Medical Center, Leiden, the Netherlands.
Hilde de JongDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.
Gillian CarterSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland, United Kingdom.
Kevin BrazilSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland, United Kingdom.
Wilco P AchterbergDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.
Jenny T van der SteenDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.

Funding

ZonMw 733051084
6 · The paper itself

Abstract

Background: The literature indicates that palliative care for people with dementia needs to be enhanced. Objectives: To assess barriers to providing high-quality palliative dementia care and potential solutions to overcome these barriers, as perceived by physicians responsible for end-of-life care with dementia. Design: Cross-sectional study. Setting: The Netherlands. Participants: A representative sample of 311 elderly care physicians of whom 67% ( Measurements: A postal survey in 2013 containing open-ended items probing for barriers in the elderly care physicians' practices and possible solutions. Answers were coded and grouped using qualitative content analysis and presented to expert physicians in 2021. Results: Barriers to palliative care in dementia were (1) beliefs held by family, healthcare professionals or the public that are not in line with a palliative care approach, (2) obstacles in recognizing and addressing care needs, (3) poor interdisciplinary team approach and consensus, (4) limited use or availability of resources, and (5) poor family support and involvement. Suggested solutions were improving communication and information transfer, and educating healthcare staff, families and the public about palliative care in dementia. Timely and frequent communication with the family, including advance care planning, and more highly skilled nursing staff were also proposed as solutions. Conclusions: The results suggest a strong need for ongoing education for healthcare professionals about palliative dementia care. Strengthening interprofessional collaboration and shared responsibility for advance care planning is also key. Increasing public awareness of the dementia trajectory and the need for a proactive approach call for a broader societal agenda setting.

Indexed as

Dementiageriatricsnursing homespalliative care

Identifiers

PMID36506875
PMCPMC7613902

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.