ArticleHealth services insights2022
Barriers and Best Practices in Disclosing a Dementia Diagnosis: A Clinician Interview Study.
Article in Health services insights, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Navigating the Threshold: Barriers and Facilitators to Accessing Primary Care Among People Living with Dementia-A Systematic Review and Meta-Synthesis.International journal of environmental research and public health · 2026Pooled it
- Toward compassionate communication: a rapid review on facilitating the dementia disclosure process.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Pooled it
- ["No shows" in dementia diagnostics: qualitative perspectives of patients and caregivers after a positive case finding by general practitioners].Zeitschrift fur Gerontologie und Geriatrie · 2026Article
- Using saliency and tacit knowledge for person-centred care: a two-phased qualitative study on patient and family involvement in residential care.BMC geriatrics · 2026Article
- Developing an integrated dementia care model using service blueprinting: process visualization and failure point analysis.BMC health services research · 2026Article
- Recognition and Management of Cognitive Impairment in Chronic Obstructive Pulmonary Disease (COPD): Implications of Clinical Confidence.Medicina (Kaunas, Lithuania) · 2026Review
- Medical professionals' perspectives and experiences in disclosing a dementia diagnosis: a grounded theory study.BMC geriatrics · 2026Article
- I'm still here and my opinion matters: a scoping review on the experience of epistemic injustice among people living with dementia.Current psychology (New Brunswick, N.J.) · 2026Article
- What needs to be addressed in caring for people living with dementia? A multi-faceted evidence on financial, psychological, and physical health issues in dementia care.Frontiers in dementia · 2026Article
- AI-augmented frameworks for enhancing Alzheimer's disease clinical trials: A memory clinic perspective.The journal of prevention of Alzheimer's disease · 2025Article
- Development of the Clinical Insight Questionnaire: A Novel Clinical Tool for the Assessment of Insight Into Cognitive Symptoms and Everyday Functioning in People With Neurodegeneration.International journal of geriatric psychiatry · 2025Article
- Dementia Diagnosis Unawareness and Caregiver Burden in a Multi-ethnic Cohort.Journal of general internal medicine · 2025Observational
- "You like to be in control of your own destiny to a degree, don't you?": conscientious autonomy and planning for future care with dementia.BMC palliative care · 2025Article
- Identifying the needs of natural caregivers caring for a person with dementia: a mixed method study.BMC primary care · 2025Article
- Sex Differences for Social Determinants Associated with Lewy Body Dementia Onset and Diagnosis.Neuro-degenerative diseases · 2025Article
- Persons living with dementia and caregivers' communication preferences for receiving a dementia diagnosis.PEC innovation · 2024Article
- Best Practices for Communicating a Diagnosis of Dementia: Results of a Multi-Stakeholder Modified Delphi Consensus Process.Neurology. Clinical practice · 2024Article
- The Room Where It Happens: Clinician Reflections on Returning Preclinical Alzheimer's Biomarker Results to Research Participants.The journal of prevention of Alzheimer's disease · 2024Observational
- "…but I know something's not right here": Exploring the diagnosis and disclosure experiences of persons living with ALS.PloS one · 2024Article
- A Multidimensional, Person-Centered Framework for Functional Assessment in Dementia: Insights from the 'What', 'How', 'To Whom', and 'How Much' Questions.Journal of Alzheimer's disease : JAD · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The vast majority of individuals with dementia want to receive a diagnosis. Research suggests, however, that only a fraction of individuals with dementia receive a diagnosis and patients and families often feel the information is poorly explained. We thus aimed to assess clinician-reported barriers to dementia disclosure and recommendations for giving a dementia diagnosis. To accomplish this, we performed telephone interviews with 15 clinicians from different specialties using a semi-structured interview guide. Transcripts were analyzed thematically. Clinician-reported barriers fit 3 categories: patient and caregiver-related barriers, clinician-related barriers, and barriers related to the triadic interaction. Patient and caregiver-related barriers included
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.