ArticleJournal of Alzheimer's disease : JAD2023
Diagnosis and Care Use for People with Young-Onset Dementia in Primary Care in the Netherlands.
Article in Journal of Alzheimer's disease : JAD, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- The prevalence and incidence of young onset dementia in the Netherlands: a prospective study in two catchment areas.Alzheimer's research & therapy · 2026Article
- Dementia diagnosis and prescription of antidementia drugs: An analysis of German claims data (2006-2016).Journal of Alzheimer's disease : JAD · 2025Article
- Global, regional, and national burdens of early-onset Alzheimer's disease and other dementias in women, 1990 to 2021.Journal of Alzheimer's disease reportsArticle
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTimely diagnosis and adequate care is important for persons with young-onset dementia (YOD) and their caregivers, due to the high impact of the disease. Initiating care can be difficult for the general practitioner (GP) and other healthcare professionals.
objectiveProvide insight in the care use of persons with YOD and identify factors influencing care use.
methodsA primary care register was used for this study. Information on the care use of persons with YOD was extracted from the GPs written notes. Information entailed time until start of care use, reasons and factors influencing the GP's decision, and reasons and factors influencing actual care use were included. Analyses included quantitative explorative descriptive analyses, and qualitative manifest content analyses.
results75 persons with YOD were included in this study. The main reason for GPs to refer for diagnosis was concerns of caregivers. After diagnosis, 72% of the persons were assigned a case manager, 42.7% received day care, and 44% were admitted to a long-term care facility. A higher percentage of persons without a case manager was admitted to a long-term care facility (64%) compared to the persons with a case manager (36%). Reasons for not initiating care were reluctancy of the persons with YOD or their caregivers, the person deceased, or because the GP did not refer for care.
conclusionCare use differed between persons due to different needs and reasons. Although most persons with YOD receive care in the years after diagnosis, there are still factors that could be improved.
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