Evidence map›Paper›PMID 36498364›Full record

ArticleInternational journal of environmental research and public health2022

Getting the FACS: A Protocol for Developing a Survey Instrument to Measure Carer and Family Engagement with Mental Health Services.

Darryl Maybery, Andrea Reupert, Irene Casey Jaffe, Rose Cuff, Zoe Duncan, Addy Dunkley-Smith, Anne Grant, Melissa Kennelly, Bjørg Eva Skogøy, Bente Weimand and 1 more

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Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

11 authors.

Darryl MayberyDepartment of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia.
Andrea ReupertSchool of Educational Psychology & Counselling, Monash University, Melbourne 3800, Australia.ORCID 0000-0003-1447-7769
Irene Casey JaffeHarvard T.H. Chan School of Public Health, Harvard University, Boston, MA 02115, USA.
Rose CuffSatellite Foundation, Melbourne Central, Melbourne 3000, Australia.
Zoe DuncanDepartment of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia.
Addy Dunkley-SmithDepartment of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia.
Anne GrantSchool of Nursing and Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK.
Melissa KennellyDepartment of Rural Health & Indigenous Health, Monash University, FaPMI Strategy, Mildura 3500, Australia.
Bjørg Eva SkogøyNordland Research Institute, 8049 Bodø, Norway.
Bente WeimandCenter for Mental Health and Substance Abuse, University of South-Eastern Norway, 3004 Drammen, Norway.
Torleif RuudDivision Mental Health Services, Akershus University Hospital, 1478 Lørenskog, Norway.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Government policies recommend, and all stakeholders benefit, when mental health services meaningfully engage with carers and family. However, health service engagement with carers is inadequate, and often non-existent with children whose parents are service users. There are seven fundamental ways that carers and families want to be integrated with and engaged by health services but current survey instruments do not capture these seven engagement practices. This protocol describes the development of two closely aligned Family and Carer Surveys (FACS) to measure engagement of service users in mental health services. The new measures are based on the seven engagement themes and a conceptual distinction between the carer and family, with particular focus on where the service user is a parent. The instruments will be developed in five stages; (1) item generation (2) Cognitive pretesting of survey (3) preliminary item content quantitative assessment (4) psychometric analysis of a large data collection and (5) selection of items for short form instruments. These steps will operationalise the seven fundamental ways that families and carers want to be engaged with mental health services, thereby providing valid and reliable measures for use in research and benchmarking of carer and family engagement.

Indexed as

Mental Health ServicesCaregiversChildHumansPsychometricsSurveys and Questionnairesfamily healthparental mental and physical illness and disabilityyoung carersyouth adjustment to parental illness

Identifiers

PMID36498364
PMCPMC9741005

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.