ArticleInternational journal of environmental research and public health2022
Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed.
- Assessing family quality of life in families of people with brain injuries: a Delphi study.Health and quality of life outcomes · 2026Article
- Self-Perceived Quality of Life and Physical Activity Levels Through Accelerometry in Young People with Intellectual Disabilities.Healthcare (Basel, Switzerland) · 2026Article
- General Self-Efficacy Among Pregnant Women Attending Antenatal Care Units in Tunisia and Its Association with Family Quality of Life: A Multicenter Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2025Article
- Family quality of life after brain injuries: a qualitative study on the perspectives of family members.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- The Quality of Life of Iranian Mothers and Fathers of Children with Autism.Children (Basel, Switzerland) · 2025Article
- Emotional ecosystems: Understanding the relationship between family interactions and anxiety among cancer caregivers.Palliative & supportive care · 2025Article
- Understanding family caregiving and well-being in adult chronic illness: a call for a more comprehensive perspective.Frontiers in public health · 2025Article
- Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia.Children (Basel, Switzerland) · 2024Article
- Family quality of life of caregivers of individuals with autism, with other disabilities, and without disabilities: the case of Saudi Arabia.International journal of developmental disabilities · 2024Article
- Exploring Sleep in Caregivers of Children with Autism Spectrum Disorder (ASD) and the Relationship to Health-Related Quality of Life (HRQoL) and Family Quality of Life (FQoL).Medicina (Kaunas, Lithuania) · 2023Article
- Quality of life of Brazilian families who have children with Fragile X syndrome: a descriptive study.Journal of community genetics · 2023Article
- Quality of life, socioeconomic and psychological concerns in parents of children with tuberous sclerosis complex, STXBP1 and SYNGAP1 encephalopathies: a mixed method study.Frontiers in pediatrics · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The lack of quality of life is a key issue for families with children with an intellectual disability. While the quality of life for people with disabilities has previously been researched as an individual variable, this has now shifted to include family members. The purpose of this study was to conduct a review of the studies measuring the quality of life of families with an intellectually disabled member, in order to identify the most commonly used scales and their psychometric properties.
methodData were collected from six databases (ERIC, Web of Science, Scopus, CINAHL, MedLine, and Google Scholar), and this search yielded 3948 studies. One hundred and twenty studies that met the inclusion criteria were included in this study.
resultsNine scales were used in the last years to measure the quality of life for families with individuals with an intellectual disability. The Beach Center scale was the most common scale, followed by the Family Quality of Life Survey and the World Health Organization's quality of life assessment (WHOQoL-BREF). The results showed that the included studies in the review lack the consideration of a broader population representing the different types of cultures with different socioeconomic backgrounds. Key aspects used to assess the FQoL are environmental factors (proximal and distal factors), as well as economic factors.
conclusionAlthough the operationalization of the FQoL often incudes several subthemes, a general agreement regarding which domains of the FQoL need to be included in the measurements, and these do not exist right now. Moreover, multidimensional scales are still rare.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.