ArticleMethods of information in medicine2022
FAIR Aspects of a Health Information Protection and Management System.
Article in Methods of information in medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundPrivacy management is a key issue when dealing with storage and distribution of health information. However, FAIR (Findability, Accessibility, Interoperability, and Reusability) principles when sharing information are in increasing demand in several organizations, especially for information generated in public-funded research projects.
objectivesThe two main objectives of the presented work are the definition of a secure and interoperable modular architecture to manage different kinds of medical content (xIPAMS [x, for Any kind of content, Information Protection And Management System] and HIPAMS [Health Information Protection And Management System]), and the application of FAIR principles to that architecture in such a way that privacy and security are compatible with FAIR.
methodsWe propose the concept of xIPAMS as a modular architecture, following standards for interoperability, which defines mechanisms for privacy, protection, storage, search, and access to health-related information.
resultsxIPAMS provides FAIR principles and preserves patient's privacy. For each module, we identify how FAIR principles apply.
conclusionsWe have analyzed how xIPAMS, and in particular HIPAMS (Health content), support the FAIR principles focusing on security and privacy. We have identified the FAIR principles supported by the different xIPAMS modules, concluding that the four principles are supported. Our analysis has also considered a possible implementation based on the concept of DACS (Document Access and Communication System), a system storing medical documents in a private and secure way. In addition, we have analyzed security aspects of the FAIRification process and how they are provided by xIPAMS modules.
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