Evidence map›Paper›PMID 36495228›Full record

ArticleWestern journal of nursing research2023

Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form.

Coretta Jenerette, Julia O'Brien, Cheedy Jaja, Evanilda Souza de Santana Carvalho, Cheryl Brewer, Ronald L Hickman

Abstract read
In one paragraph

Article in Western journal of nursing research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Coretta JeneretteCollege of Nursing, University of South Carolina, Columbia, SC, USA.ORCID 0000-0002-9851-4768
Julia O'BrienSchool of Nursing, University of Pittsburgh, Pittsburgh, PA, USA.ORCID 0000-0002-3208-3344
Cheedy JajaCollege of Nursing, University of South Carolina, Columbia, SC, USA.
Evanilda Souza de Santana CarvalhoDepartment of Health, State University of Feira de Santana, Feira de Santana, Bahia, Brazil.
Cheryl BrewerPrivate Diagnostic Clinics, Duke Health, Durham, NC, USA.
Ronald L HickmanFrances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.ORCID 0000-0002-3720-2955

Funding

Technology Research in Chronic & Critical IllnessT32NR008857 · NINR · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI Young Ji Lee · 2005 to 2026
$4.0M
NINR NIH HHS T32 NR008857
6 · The paper itself

Abstract

Health-related stigma, a form of devaluation related to a health condition, is common in individuals with sickle cell disease (SCD). Pain is the hallmark symptom of SCD, and health-related stigma is often described during care-seeking for pain management. Few published instruments measure health-related stigma in individuals with SCD. This study builds on the psychometrics of the 30- and 40-item Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). In a sample of 197 adults with SCD, the results support the reliability and validity of a 21-item scale, the SCD-HRSS-Short Form, with an overall Cronbach's alpha reliability of 0.91 and discriminant validity with the PROMIS-29 subscales (anxiety, depressive symptoms, pain interference, physical fatigue, sleep, and role satisfaction). A shorter yet reliable and valid scale may decrease the burden for this underrepresented, minoritized population while still providing important information regarding their experiences of stigmatization.

Indexed as

Anemia, Sickle CellQuality of LifeAdultHumansPainPsychometricsReproducibility of ResultsSocial StigmaSurveys and Questionnairesinstrument developmentpainpsychometricssickle cellstigma

Identifiers

PMID36495228
PMCPMC10115242

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.