ArticleJournal of autism and developmental disorders2024
A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis.
Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 22 citations in OpenAlex.
- 'Being Autistic is Kind of Who You Are, It's an Identity Rather than a Disorder': Identity Negotiation and Construction Among Autistic Adults Diagnosed in Later Life.Journal of autism and developmental disorders · 2026Article
- What Factors Have Been the Most Helpful and Harmful and When? Identifying Key Impacts on Psychosocial Development According to Autistic Adults and Caregivers.Journal of autism and developmental disorders · 2026Article
- Article
- Evaluating the Acceptability of an Early Adoption of the Tele-ASD Diagnostic Assessment Tool for Adults (TADA).Journal of autism and developmental disorders · 2026Article
- Autistic Adults and Loved Ones' Experiences of a Later Life Diagnosis.Journal of autism and developmental disorders · 2026Article
- Meta-Synthesis of Autistic Adults' First-Person Perspectives About Mental Health-Related Services.Autism in adulthood · 2026Review
- The Role of Social Adversity in the Association Between Autistic Traits and Borderline Personality Disorder Symptoms.Personality and mental health · 2026Article
- Lived Experience, Family, and Clinician Perspectives on Barriers to Adult Autism Diagnosis and Post-Diagnostic Supports: A Mixed-Methods Systematic Review.Journal of developmental and physical disabilities · 2026Article
- The Lived Experience of Parents Raising a Child with Autism Spectrum Disorder: "Losing Your Way, Being on a Rollercoaster with Ups and Downs".Advances in experimental medicine and biology · 2026Article
- Age-Dependent Process Governs Executive Function Disability in Autistic Children.Journal of autism and developmental disorders · 2025Article
- A Qualitative Study of the Diagnostic Experiences of Young Autistic Adults in China.Journal of autism and developmental disorders · 2025Article
- Rethinking Social Communication Support: Exploring Communication Partner Training for Autistic Adults and Their Neurotypical Communication Partners.Autism in adulthood · 2025Article
- The Codesign and Initial Evaluation of a Peer Support Program for Autistic Young Adults.Autism in adulthood · 2025Article
- Diagnostic Experiences and Barriers to Diagnosis Among Autistic Adults in the United States: Associations with Diagnostic Timing and Gender.Journal of autism and developmental disorders · 2025Article
- "From That Moment, Everything has Changed": The Experience of Women With Anorexia Nervosa Receiving a Diagnosis of Autism.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Exploring Lived Experiences of Receiving a Diagnosis of Autism in Adulthood: A Systematic Review.Autism in adulthood · 2025Review
- Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships.Autism : the international journal of research and practice · 2024Article
- Barriers to healthcare for Australian autistic adults.Autism : the international journal of research and practice · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.